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Society for Equity Neuroscience (SEQUINS)
The Society for Equity Neuroscience (SEQUINS) is the world’s first global science organization with improving health equity via research as its primary mission. SEQUINS is…
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MS Health Equity Alliance
Website that spotlights MS patient advocates working to address health disparities, and the health equity activities and resources offered by MS patient advocacy organizations. Click…
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Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups
Members of the MS Minority Research Engagement Partnership Network developed a Web-based survey on research impressions, concerns, and preferences regarding study attributes among people with…
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Enrollment of Non-White Participants and Reporting of Race and Ethnicity in Phase III Trials of Multiple Sclerosis DMTs
This research article evaluates ethnic and racial representation in DMT clinical trials and how it has evolved over time. Non-White PwMS are significantly underreported and…
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Enhancing the Diversity of Clinical Trial Populations – Eligibility Criteria, Enrollment Practices, and Trial Designs Guidance for Industry
Over the past few decades, FDA has promoted enrollment practices that would lead to clinical trials that better reflect the population most likely to use…
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Research Inclusion, Diversity and Equity Council (RIDE Council)
A council of people diagnosed with MS of diverse races, ethnicities, and identities who can provide perspectives and guidance to researchers. Click here to access…
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People of Color with MS in Research
Presentation by Dr. Tirisham Gyang on the barriers that people of color may experience in joining clinical trials, and why it’s important that all people…
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How MS Affects the Black Community
Integrated set of resources and information about prevalence, current research, research opportunities, finding community, and engagement opportunities for Black people affected by MS. Includes information…
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Multiple sclerosis in US minority populations: Clinical practice insights
This paper offers some clinical practice insights on how to improve management of minority patients with MS
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