iConquerMS

People-powered research refers to an approach in which individuals, especially those directly affected by a particular health condition or issue, actively participate in the research process. This approach emphasizes the involvement of patients, caregivers, and community members as key stakeholders in the design, implementation, and dissemination of research studies.

At ACP, we are committed to:

Engagement of people affected by MS: Actively involving people diagnosed with MS, their caregivers, and family members, with lived experiences in the research process. iConquerMS members are invited to participate in the entire research process from identify research questions through to the interpretation and communication of results.

Collaborative Design: Engaging in collaborative efforts between researchers and the community to design research studies. This ensures that the research addresses the needs and priorities of the people most affected by the condition under investigation.

Patient-Centered Outcomes: Prioritizing outcomes that matter most to those affected by MS, rather than relying solely on traditional clinical endpoints. This helps to ensure that research findings are relevant and meaningful to those directly affected.

Empowerment: Empowering individuals and communities by providing them with the knowledge, skills, and resources to actively contribute to and influence the research agenda. This can lead to more informed decision-making and increased advocacy.

Knowledge Translation: Facilitating the translation of research findings into practical applications and disseminating information in ways that are accessible and understandable to the broader community.