MS Minority Health Hub

Research and Reports on Minority Participation in Clinical Trials and MS in Minority Communities:

The Partnership Network is collecting articles, reports, and news about MS in minority communities, minority participation in research and in the research sciences, ongoing projects, and patient information for minority audiences. We hope you find these resources useful. If you know of any additional resources that could be shared here, please email us at msminorityresearch@acceleratedcure.org.

In Journals
 
Rachel E Ventura, Ariel O Antezana, Tamar Bacon, Ilya Kister. Multiple Sclerosis Journal (November 2016)
 
Sarah M. Hartz, M.D., Ph.D., Tiffany Quan, Abiye Ibiebele, Sherri L. Fisher, M.S., Emily Olfson, M.D., Ph.D., Patricia Salyer, M.Ed., Laura J. Bierut, M.D. Genetics in Medicine (July 2016)
 
Sam S. Oh, Joshua Galanter, Neeta Thakur, Maria Pino-Yanes, Nicolas E. Barcelo, Marquitta J. White, Danielle M. de Bruin, Ruth M. Greenblatt, Kirsten Bibbins-Domingo, Alan H. B. Wu, Luisa N. Borrell, Chris Gunter, Neil R. Powe, Esteban G. Burchard PLOS: Medicine (December 15, 2015)
 
Omar Khan, M.D., Mitzi J. Williams, M.D., Lilyana Amezcua, M.D., Adil Javed, M.D., Ph.D., Kristin E. Larsen, Ph.D., Jennifer M. Smrtka, N.P. Neurology: Clinical Practice (April 2015)
 
Romana Hasnain-Wynia, Ph.D., Anne C. Beal, M.D., M.P.H. Clinical Therapeutics (May 2014)
 
Sheba George, Ph.D., Nelida Duran, R.D., M.S., and Keith Norris, M.D. American Journal of Public Health (February 2014)
 
Karen S. Kuffman, Susan dosReis, Melissa Ross, Beth Barnet, Eberechukwu Onukwugha, C. Daniel Mullins Journal of Comparative Effectiveness Research (May 2013)
 
James H. Powell, M.D., Yolanda Fleming, Cheryl Lynn Walker-McGill, M.D., M.B.A., Michael Lenoir, M.D. Journal of the National Medical Association (February 2008)
 

Reports & Proceedings

Karen M. Anderson, Steve Olson, Rapporteurs The National Academies Press (2016)
 
National Institute of Neurological Disorders and Stroke (2015)
 
Morbidity and Mortality Weekly Report (January 14, 2011)
 
Programs and Activities
 
 
In the News
 
Janet Wells UCSF Magazine (Winger 2016)
 
Brian Krans Healthline (August 3, 2016)
 
Maxine Bookbinder Clinical Informatics News (March 31, 2016)
 
Robert M. Califf, MD FDA Voice (January 27, 2016)
 
Rae Ellen Bichell Healthshots: Health News from NPR (December 16, 2015)
 
John Lechleiter Forbes (April 9, 2014)
 
NIH Office of Communications and Public Liaison (August 18, 2011)
 
Dr. Danielle N. Lee Ebony (July 16, 2014)
 
Natalie McGill The Nation’s Health (September 2013)
 
David Satcher Washington Post (February 21, 2014)
 
Research!America (July 31, 2013)
 
Multimedia
 
Personal Story of Living with MS: Maria Reyes Velarde (5:25)
National MS Society (2015) (Spanish)
 
National MS Society (2015) (Spanish)
 
National MS Society (2012)
 
A discussion about the importance of African Americans to participate in clinical trials and more research that targets African American patients with MS as reasons for hope (8:22) National MS Society (2011)
 
A discussion about the unique clinical characteristics of MS and Africans Americans, the importance of establishing a relationship with your physician, and the stigma of disease in the African American community (11:17) National MS Society (2011)
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