Research opportunity and event information may be provided on behalf of an external organization. Please refer to the contact information within each listing to identify the contact for questions or comments.
Here’s your chance to let the FDA know what people with MS truly need
Your voice can help shape future MS treatments! Share your experiences by taking the Shaping Tomorrow Together survey: https://s.alchemer.com/s3/Perspectives-on-MS.
Accelerated Cure Project is partnering with the National MS Society to understand what matters most to people affected by MS when it comes to current and future treatments. The anonymous survey will take about 30-45 minutes to complete, depending on how much detail you share. It has a “save and continue later” option if you need a break at any point. Once you submit the survey, you can enter to win a $50 Amazon gift card.
Learn more about the survey at www.nationalmssociety.org/shapingtomorrowtogether or get started now https://s.alchemer.com/s3/Perspectives-on-MS.
The results of the survey will help to plan a meeting with the FDA called an “Externally-Led Patient-Focused Drug Development Meeting” (or EL-PFDD). The National MS Society will host this livestream meeting on October 29, in partnership with Accelerated Cure Project and other MS organizations. By taking the survey now, you can help us plan a meeting that shows the different ways people experience MS and their views on what needs are not being met by current treatments. Both the survey and the meeting will inform the FDA, life science companies working on MS treatments, researchers and healthcare professionals.
Learn more at nationalmssociety.org/shapingtomorrowtogether. We’re excited to learn from your answers to help shape the future of MS treatment!
A new topic for the Our Questions Have Power program!
When it comes to MS symptoms and how to manage them, what questions are most important to you? What symptom-related topics do you wish researchers were studying? Your questions are valuable and we invite you to share them through the Our Questions Have Power program on the iConquerMS website.
The Our Questions Have Power program was launched in March 2021 with an initial focus on COVID-19. Questions submitted by iConquerMS members have helped shape the COVER-MS vaccination study and are being shared with the research community to guide other efforts.
We’re now extending Our Questions Have Power to include a second topic: MS symptoms and their management and treatment. As before, you’re invited to share questions on this topic that you think should be studied and to vote on questions submitted by other iConquerMS members. We’ll share these questions with people affected by MS, researchers, healthcare professionals, advocates, and funders – and, together, we’ll work to launch research studies to answer those questions.
It’s easy to share your ideas and input in Our Questions Have Power!
