News for the Multiple Sclerosis Community

Handicap parking problems

The Mercury News has some reader feedback about parking in handicap spots with "invisible" disabilities like MS can be for some. I've been thinking about this issue lately (people harrassing you because you don't look handicapped) and thought that we could use the opportunity to try and educate some people. It might be useful to have some little cards made up that explain the situation, asks the offending person to be aware that not all disabilities are visible, and point them to a site (like Boston Cure Project) for more information and to contribute to the cause.

One the one hand, they are trying to do the right thing by stopping non-handicapped people from abusing the spots, but on the other, it is very frustrating to constantly have people angry with you incorrectly.

Dear Readers, Please, please contact Channel 5 Nashville. Website is www.NewsChannel5.com go to the index at the side and click on NC5Investigates. You will be able to see and read what they have done all week. Then email the news director at mcutler@newschannel5.com All week long they ran a series on disability spots and videotaped people getting out of cars that didn't appear to have disabilities. They put them through the third degree and if I were on camera I would not want to reveal to all of middle Tennessee that I have MS. Some people may have been abusing Nashville's system. But the end product makes it look like if you are disabled you are not ever suppose to be able to walk, carry packages, etc. It seems like it has set us all up for verbal abuse if we want to have a life too. Please contact them - disabilities are not just on the outside. If we let it go people will eventually pass laws that won't allow MSers disability plates!!!
art's picture
To: mcutler@newschannel5.com Hi, It's been brought to my attention that you've been running a spot catching handicap placard abusers on video. As the president of the Boston Cure Project for Multiple Sclerosis, I applaud your efforts to bring attention to a serious problem that can make life more difficult for people with disabilities. I feel I must also comment on your methods which may result in having the opposite effect. Not all disabilities that impact a person's ability to get around are immediately visible, nor would that person want to go on record on television as having that disability. E.g. multiple sclerosis can cause severe weakness and fatigue in affected individuals and they may appear completely healthy when getting out of a car and walking the short distance to the car. But it might be very difficult or painful for them to walk any distance beyond that, necessitating the need for special parking. When confronted by a reporter, they may not wish to admit to the camera that they have multiple sclerosis. Please consider this when spreading the stereotype that all handicapped people have visible problems walking. It's traumatic enough to be accosted regularly when validly parking in handicap spots without having to be put on television. You can see the comments from some others on our public forum that brought this to my attention. Regards, Art Mellor President, Boston Cure Project for Multiple Sclerosis
Someone once hassled me at a handicapped parking spot. A nasty woman screamed at me and said, "You don't look handicapped" to which I replied- "You don't look stupid, but things aren't always as they appear". :) My mom was with me and said "good answer". The reality is that many non-disabled individuals pull into handicapped spots all the time to drop off their mail, get coffee, etc. They don't realize the huge impact that has on others. And, there are many young disabled adults with so called "invisible disablilites" i.e. lupus, chronic fatigue syndrome, etc. that are hurting. After a few moments, it becomes clear who needs the spot and who doesn't. The woman who shot her mouth off at me bit her tongue when she saw the difficulty I was having after a few steps. I know next time she will think and observe before she speaks.
I have MS and have a handicap parking permit which I try not to use unless at last resort which means my legs have to be in pain or not cooperating. I donot like adding attention to myself but when I get out of the car in a suit I always get a "Look". A few times I've been harassed and twice it got so bad that I felt my life was at wrisk. I'm a non-confrontational person, very positive and emotionally strong. After these incidents I realize there is such a need to educate the community about MS but also a need to change the look and verbiage of the parking permit. There is a permit for women with baby carriers and our permit is for the "diabled" with a picture of a wheelchair. There are many people challenged with long distance walking because of their heart, respiartory, vision, neurological problems etc... but they donot utilize a wheelcahir to get around. We use our legs and would like to for as long as we could and the illness will allow. Why not create a permit with a person walking and it to read "Person with difficulty walking long distance" If you have any ideas on the look or phrase to be used on the permit please email me at VCEE99@bellsouth.net