LDN Story
Submitted by Graham(UK) on Thu, 2008-09-11 06:12.
More anecdotal evidence of benefit of LDN, this time from the UK. Interestingly the UK MS Society aren't so disparaging about LDN as they used to be.
More anecdotal evidence of benefit of LDN, this time from the UK. Interestingly the UK MS Society aren't so disparaging about LDN as they used to be.
Dear Sirs My experience with
Dear Sirs
My experience with Low Dose Naltrexone, not good:
I'm 53 years old and was diagnosed with MS in May of 2004. I have RRMS and I started on on Betaseron in 2004. My MS seemed to be under control and my health was good. I stayed on Betaseron until January of 2008. I stopped because the price was $1900.00 per month until my $5000 deductible was met, and then it was going to cost $380.00 per month.
I started reading about LDN in 2004 and I was interested. I kept running across articles and positive stories about LDN. I researched it more and more and I found where individuals taking the drug could rate the effects on remedyfind.com and it looked like an A+ drug based on anecdotal evidence.
I also read where Skip at Skips Pharmacy ( probably the #1 LDN provider) knew of only one person who progressed on MS while taking LDN over all the years he has dispensed the drug.
In February of 2008, I talked to my Neuro about the high expense of Betaseron and how it was becoming more un-affordable. I talked to him about LDN and he tried to talk me out of it, but I said I really wanted to give it a try. He agreed to prescribe if only if I agreed to get a MRI in 6 Months.
I got the prescription and purchased it from Skips Pharmacy. I started taking 4.5 mg LDN on February 15, 2008. As promised, I got my MRI in July 2008 and my doctor called me to come in to discuss the results. In August he informed my I had TWO new lesions and ONE enhancing lesion. He encaged me to get back on one of the injectables which I did with financial help form Betaplus.
About the time I stopped the LDN and started my Betaseron again, I had an exacerbation. Symptoms were: numbness in my legs, feet, fingers and trunk. I also was having about 10 to 12 Paroxysmal Seizures for about 2 weeks.
Anyway, for those of you that are encouraged about the drug and need more anecdotal evidence, you have my testimony.
Sincerely
David Burck
It's a good point - LDN has
It's a good point - LDN has not had appropriate trials in MS to determine its efficacy. There is plenty of anecdotal evidence that it works for some people, and small trials are under way at the moment, but we need to have sufficient evidence to definitively say that it is useful in MS. We don't have that evidence yet.
Please keep that in mind.
***
Art Mellor, Accelerated Cure Project for MS, art-msnews -at- acceleratedcure.com
what are paraxymal seizures?
what are paraxymal seizures? are they anything like feeling tight bands around your chest that make you think you can't breathe?
Paraxymal seizures are
Paraxymal seizures are non-epileptic seizures, they mimic the epileptic event, but do not involve the same firing of neurons in the brain. If that makes you feel any better!
I know this might be
I know this might be considered crude, but since Halloween is right around the corner, I'm wondering if anyone knows where I could pick up one of those human exo-skeletons? I think it would be fun to try, and plus you could scare the bejeepers out of the little tykes in the neighborhood!
Woweee! I can't believe
Woweee! I can't believe there isn't more censorship! By the way I'm not wearing pants right now. I just want everyone to know, that you can't know it all like me, this disease sucks, and at least we can have fun talking to the insurance companies about our huge walker accident. That really wasn't funny so excuse me.