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Tovaxin User's First Hand Account
"I am actually out doing things again. I am going by myself to see some friends in San Francisco in two weeks. This is amazing, since two years ago, my parents were taking me from our home in Michigan to Houston in a wheelchair.
Tovaxin is an autologous vaccine. That means they take some of my blood, cull out the T-cells and introduce them to human myelin. Those that react to the myelin are culled out and replicated. Once there are enough for the vaccine, about 45 million cells, the T-cells are irradiated so that they are still alive, but cannot reproduce. That is the vaccine.
The vaccine is injected just under my skin, you can see some pictures at http://www.TimsWellness.com, and the body treats these T-cells as a foreign invader and makes antibodies to eliminate only these specific T-cells. These antibodies not only take out the T-cells from the vaccine, but also eliminate all of that same type of T-cell throughout my body.
The body produces 2 to 3 trillion red blood cells per day. I am not sure how many T-cells are produced per day, but if 1 or 2 per million are troublemakers, that means there are hundreds of millions of myelin reactive T-cells floating around in the blood stream of someone with MS. A flare is when the body produces too many of these bad T-cells. No one is sure why this happens, but it may be caused by an upper respiratory infection, or a cold sore, or some other immune response that triggers the body to produce T-cells that mistake myelin as something bad.
By eliminating these 1 or 2 per 1 million T-cells does not compromise the immune system, but it does eliminate all of the T-cells that destroy the myelin. No bad T-cells means no more attacks. Anyone on Tovaxin will need to get a booster twice a year to keep the antibodies at a level sufficient to continue to eliminate all of the myelin reactive T-cells as they are produced. This is just like a flu shot.
I think about 30 to 40% of the damage that was done by the attacks has been reversed. The body will repair itself, as long as the attacks stop. I am helping myself by doing a lot of exercising and activities that improve my small motor skills.
I am doing many things that I was no longer able to do. When I started the vaccine, my parent's were cutting my food and feeding it to me. I am able to cut my own food, and today, I peeled some shrimp. Realizing that I can again do something as insignificant as peel a shrimp really makes me feel good. I used to wonder why people got so excited to see a disabled family member regain some little ability, now I understand, and I understand why my family is trilled at even my smallest improvement.
You will need to let me know what you would like me to write about. At this point, I feel that I am starting to ramble on, so I will stop. Ask me some questions, and I will try to answer them. I can even get a little deeper into the science behind all of this, and if I cannot answer it, I am sure I can get some highly technical, totally incomprehensible scientific explanation from one of the doctors involved in the study."


Tovaxin
This is great news. It really does act just like a vaccine. And there can't be any host-graft problems on account of it's your own cells. If this is true 'my heart soars like a hawk.'
If this stuff works, how expensive is it? If they are doing autologous cloning, they could make you a lifetime supply or you could go year by year.
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Hi Tim
I want to get a quote from the company regarding how much it would cost to dose all Australian MS patients (est. 660,000 by MS Society) who should I speak to/email initially? I wish to submit the info. to the Federal Government of Australia A.S.A.P.
Cheers Cathy Manners
Hello Cathy, Have
Hello Cathy,
Have you been able to find the info you wanted re Tovaxin ie the company,the cost? I have a daughter and a niece in Australia with MS and am vitally interested.
I would like to know where I can email, phone and/or write to support your proposal to the Federal Australian government.
In hope
Regards
Ann Johnson
hope!
Re:hope!
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Are we garanteed to be able
Are we garanteed to be able to get the booster shot? What if we aren't
Art, it has been a couple
Art, it has been a couple years now since you were treated with Tovaxin-How is your symptomology now? Do you continue to improve? Do you continue to receive injections? I'm very interested to know the long term outcome from your treatment and are you as satisfied now...
Thanks
Tim
I'm not on Tovaxin, just
I'm not on Tovaxin, just posting stories from others.
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Art Mellor, Accelerated Cure Project for MS, art-msnews -at- acceleratedcure.com
Oh thanks...I'm a family
Oh thanks...I'm a family practice Doc and an investor in OPXA. Just wondering how the patients have been responding to the treatment. The science behind this tx is solid and it gives hope to a lot of people suffering from MS. Any news from folks who are in the phase IIB trial? your response is appreciated-Tim
Not recently, actually. And
Not recently, actually. And I see that Tim's site is under construction. Hmmm...
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Art Mellor, Accelerated Cure Project for MS, art-msnews -at- acceleratedcure.com
Hello, congratulations are
Hello, congratulations are in order and I am definetely one who can appreciate the significance in pealing a shrimp.
I have MS, volunteered for a Tovaxin Study but did not have a mylin reactive t-cell, bummer I know, but just wondering if youve heard of anything similar I can go for? Im currently taking Avonex onece a week but well, its not slowing the progression. Thanks for reading and I hope to learn something knew everday. Oh, and Im very very happy for you!
Chris, Atlanta, GA