[Accelerated Cure Project Status] Informal status for July 2009

[Jane Follansbee]

Accelerated Cure Project informal status for the 
months of July and a little bit of August 2009

(Information on our other mailing lists and 
unsubscribing is at the bottom of this message.)

 >>> Joining/Leaving Us This/Last Month

o After more than 5 years of dedication to 
Accelerated Cure Project, Julie Morgenlender has 
left her role of Operations Director to pursue other interests.

o Joining us as our new Operations Manager is Bob 
Brennan.  His bio will be coming soon!

o Maggie Phelan joins us as a temporary part time 
contractor assisting with administrative work.


 >>> Repository & Scientific Projects

o In July, we enrolled 44 new subjects (32 MS, 3 
TM, 1 ADEM, 2 CIS, 6 controls) to result in a 
total of 1670 subjects.  14 people also returned 
for second visits, so we now have a total of 94 longitudinal visits.

o Our 9th collection site, located in Denver, CO 
enrolled its first subject!  Check out the great 
article below.  To make an appointment to enroll, 
please contact Sydni Edwards at Sydni.Edwards at ucdenver.edu.

<http://www.denverpost.com/ci_13041206>http://www.denverpost.com/ci_13041206

o In addition, recruitment efforts are going 
strong at our two other recently-opened 
sites:  Beth Israel Deaconess Medical Center in 
Boston, MA, and Ohio State University Medical Center in Columbus, OH.
To enroll at these new sites, please contact:
Beth Israel:  Sarah Konkel - skonkel at bidmc.harvard.edu
Ohio State:  Lisa Hafer - Lisa.Hafer at osumc.edu

o Sara visited our repository team at Beth Israel 
Deaconess Medical Center (Dr. Kinkel, Sarah 
Konkel, Dr. Speranza) to go over their enrollment plans.

o We continued working with our sites to identify 
subjects eligible for the Diogenix study, as well 
as NMO subjects for our collaboration with the Guthy-Jackson Foundation.

o We sent out four repository proposals to our 
oversight committee for their review, and 
answered many questions from scientists developing new proposals to send us.

o Sara, Kristin and Hollie gave a presentation to 
the ACP board of directors on our repository 
monitoring and continuous improvement processes.

o Hollie had a conference call with her ISBER 
collaborators to plan putting the final touches 
on their cost recovery survey report.

o Hollie met with advisory board members David 
Simon, Amit Bar-Or, and Al Sandrock to talk about 
future plans for our scientific programs.  She 
also met with Tim Armour of the Cure Alzheimer Fund.


 >>> Education

o We continue our MS News updates, although on a 
less frequent basis due to Art's departure (1-2 times per week):

<http://msnews.acceleratedcure.org/>http://msnews.acceleratedcure.org


 >>> Community Building

o YPAC - 'Young Professionals Accelerating the 
Cure' has officially launched – read about their 
first event below!  We have an enthusiastic group 
of young professionals dedicated to Accelerated 
Cure Project's mission leading this initiative.

o Accelerated Cure Project is proud to announce 
that Fast Forward, a subsidiary of the National 
Multiple Sclerosis Society, has formally decided 
to collaborate with and endorse Accelerated Cure 
Project's MS repository.  Specific details 
regarding what this collaboration will entail will follow.


 >>> Operations

o The Summer 2009 issues of Update is now 
available online!  To save costs, this issue was 
not printed and is available online only.  View 
it here: 
<http://www.acceleratedcure.org/downloads/acp-update-vol0802.pdf>http://www.acceleratedcure.org/downloads/acp-update-vol0802.pdf

o Our new booklet, Opening Doors to Cure MS, is now available online here:
<http://www.acceleratedcure.org/downloads/acp-openingdoors2009.pdf>http://www.acceleratedcure.org/downloads/acp-openingdoors2009.pdf

o We began looking for an intern to work on our 
Opening Doors Recognition Gala and Annual 
Event.  The internship is 10-20 hours a week and 
is unpaid.  If interested, please contact Kristin 
at kristin-intern at acceleratedcure.com, 781-487-0008.

o Our 2008 audited financials are now available 
on our web site, with our 990 soon to follow, here:
<https://www.acceleratedcure.org/about/annualreport.php>https://www.acceleratedcure.org/about/annualreport.php


 >>> Events

Detailed information about all of our recent events can be found on
our web site:
<http://www.acceleratedcure.org/events/calendar.php>http://www.acceleratedcure.org/events/calendar.php

o September 20, Albuquerque, NM: Join us for 
Accelerated Cure Project's first jazz concert, 
"Healing, Harmony, & Heart" this fall!  Check out all the details:

<http://www.acceleratedcure.org/events/eventpages/20090920_JazzHHH.php>http://www.acceleratedcure.org/events/eventpages/20090920_JazzHHH.php

o September 27, Boston, MA:  Play Wiffle Ball? 
Think you got game? Now's your chance to show off 
your skills.  YPAC (Young Professionals 
Accelerating the Cure) is proud to present their 
kickoff event, the first annual "Life's a Pitch: 
Strike Out MS" wiffle ball tournament.  Register 
your team of 3-5 players to play in a round robin 
tournament.  Website coming in a couple days!

o October 5-11, Bay Area, CA: The Tyler Hamilton 
Foundation and Accelerated Cure Project are 
teaming up again for MS Global 2009!  25 riders 
will embark on a multi-day cycling event in 
Northern California with US Pro Cycling Champion 
and Olympic gold medalist, Tyler Hamilton, as they raise funds to fight MS.
   **We need RIDERS! Email jane-msglobal at acceleratedcure.com for more info!**

<http://www.acceleratedcure.org/events/eventpages/20091005_thf.php>http://www.acceleratedcure.org/events/eventpages/20091005_thf.php

o October 10, Cincinnati, OH: We're excited to 
announce the 4th Annual Canine Happy Hour to 
benefit Accelerated Cure Project. Mark your 
calendar and stay tuned for more details!

<http://www.acceleratedcure.org/events/eventpages/20091010_k9hh.php>http://www.acceleratedcure.org/events/eventpages/20091010_k9hh.php

o October 17, Boston, MA:  **NEW - DON'T MISS 
THIS**  Join us for our Inaugural 'Opening Doors' 
Symposium and Recognition Dinner.  Along with a 
cocktail reception, dinner, silent and live 
auctions, and music, we'll be highlighting the 
accomplishments of key supporters and announcing 
the future vision of our organization. For details, see link:

http://www.ACPOpeningDoors.com

o October 25, Washington, DC: Accelerated Cure 
Project has received 25 charity numbers for the 
Marine Corps Marathon in October.  This is your 
chance to run one of the most beautiful (and 
flattest) marathons in the country while raising 
funds for a great cause.  Interested runners can 
join this fantastic team by simply emailing erin at acceleratedcure.org!
<http://www.acceleratedcure.org/events/eventpages/20091025_marinecorp.php>http://www.acceleratedcure.org/events/eventpages/20091025_marinecorp.php

o October 25, Arlington, MA: Our longest running 
volunteer event, Sing to Cure MS, has changed its 
name in its 7th year to "Music To Cure MS." 
Members of Boston Lyric Opera, Opera Boston, and 
other classical singers and musicians donate 
their glorious talents.  Please join us for the 
chance to win gift certificates and snack on 
refreshments while enjoying a concert to cure MS!

<http://www.acceleratedcure.org/events/eventpages/20091004_music.php>http://www.acceleratedcure.org/events/eventpages/20091004_music.php

o November 7, Derry, NH: Save the date for the 
3rd Annual Dance to Cure MS at the Brookstone 
Events Center!  Dance to Cure MS is a fabulous 
night out for adults to socialize, dance, and 
eat, but most importantly to give hope to those 
who have MS by raising money for Accelerated Cure Project.

<http://www.acceleratedcure.org/events/eventpages/20091107_dance.php>http://www.acceleratedcure.org/events/eventpages/20091107_dance.php

o November 20, Chicago, IL: Dust off your 
flashiest footwear and save the date for the 
"Hello Stiletto Shoe Ball," a black tie evening 
of live music, dancing, and fashion taking place 
at Chicago's Holiday Inn at Mart Plaza.

<http://www.acceleratedcure.org/events/eventpages/20091120_shoeballchi.php>http://www.acceleratedcure.org/events/eventpages/20091120_shoeballchi.php

o March 6, 2010, Waltham, MA:  Please note that 
we have CHANGED THE DATE FOR OUR ANNUAL 
EVENT.  Instead of the end of November, we'll be 
bringing you the same great Accelerated Cure 
Project Annual Event in March.  More information to come.

<http://www.acceleratedcure.org/events/eventpages/20100306_acpevent.php>http://www.acceleratedcure.org/events/eventpages/20100306_acpevent.php


 >>> Volunteers Reporting Time Last Month

o Admin
    Mike Ahern
    William Senne

o Community Building
    Pat Phelps
    Janet Weinberg
    Peter Wolf

o Dance to Cure MS
    Deb DuFault
    Ann Cabot

o Cincinnati Happy Hour
    Debbie Mann
    Jodi Koehler
    Jane Harter
    Christina Urbanowicz

o Let's Bag MS
    Debbie Mann
    Susie Keller
    Maggie Wolf
    Nancy Whitney

o Recognition Dinner 2009
    Lori Hannay
    Carolyn Potts
    Phyllis Baron
    David Blohm
    Mary Blohm
    Steven Kanner
    Linda Kanner
    Gabe d'Annunzio
    Jill McGaffigan
    Shawn LaVana

o System Administration
    Peter Schmidt
    Dave Baker

o MJS Scholarship Program
    Rick Szczepanski

o Music to Cure MS
    Marion Leeds Carroll
    Matthew DiBattista

o The Wellness Resolution
    Cher Kore
    Ama Allara

o New Mexico Jazz Concert
    Eileen Devereux
    Tommy Gearhart

o MS Global 2009
    Bill Hamilton
    Tyler Hamilton
    Erik Schmidt

o YPAC
    Chris Beaman
    Theresa Grenier
    Carson Lappetito
    Jackie Mosher
    Anna Peabody
    Maggie Phelan
    Vassar Pierce
    JD Shih

o Hello Stiletto Shoe Ball - Chicago
    Sandra Aussem
    Melissa O'Shea
    Melanie Aussem-Walk
    Bridget Carroll
    Alicia Geisler
    Rashida Jones
    Stephen Huntley
    Debbie Revenaugh
    Judy Schultz
    Jackie Nakumura
    Joan Luedke



 >>>Contributed Goods and Services


Anonymous
Carey Peabody
Carolyn Passalaqua
Clockwork Design Group, Inc
Cresa Partners
Jack Ankenbauer
David Kim
Peter Wolf

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