[Accelerated Cure Project Status] Informal status for the months of May and June 2009

[Carolyn Cronin]

Accelerated Cure Project informal status for the months of May and June 2009

Information on our other mailing lists and unsubscribing is at the 
bottom of this message.

 >>> Joining/Leaving Us Last Month

o After 8 years of a life dedicated 100% to MS, Art Mellor has left 
to pursue additional interests.  He will retain a position on 
Accelerated Cure Project's national board and will maintain a 
consulting relationship to aid in transition and future projects.  We 
wish him success in his new endeavors!

 >>> Research

o We reached a new milestone on June 25 -- enrollment of our 1,000th 
MS subject!

o Another milestone was the opening of our ninth collection 
site:  The Rocky Mountain MS Center at Anschutz Medical Campus at the 
University of Colorado Denver.  If you live in or can travel to the 
Denver area and would like to enroll in our repository there, please 
contact Sara Loud at sloud at acceleratedcure.org or 1-781-487-0032.

o During May and June, we enrolled 66 new subjects in our repository, 
resulting in a total of 1,616 subjects.  Our sites also conducted 30 
longitudinal visits, bringing us to a total of 78.

o Sara, Hollie and Art attended the annual conference of the 
international biobanking organization ISBER, where Sara and Hollie 
gave a presentation and held a meeting for their working group on 
marketing and cost recovery.

o We continued working with Diogenix and the Guthy-Jackson Foundation 
to collect samples meeting their specific needs.  Our UMass, UT 
Southwestern, and Johns Hopkins sites all received approval to 
conduct a special collection for Diogenix involving people with MS 
who are going on steroid treatment for relapses.

o We distributed samples and data from 5 NMO subjects and 5 controls 
to Dr. Roberto Baccala at Scripps Research Institute.  You can read 
about this project and 19 other studies we have supported here:
http://www.acceleratedcure.org/repository/research.php

o We received three other proposals in May and June and they are 
currently being evaluated.


 >>> Education

o We continue our MS News updates, although on a less frequent basis 
due to Art's departure (1-2 times per week):

   http://msnews.acceleratedcure.org


 >>> Community Building

o YPAC - 'Young Professionals Accelerating the Cure' has officially 
launched.  We have an enthusiastic group of young professionals 
dedicated to Accelerated Cure Project's mission leading this initiative.

o Accelerated Cure Project is proud to announce that Fast Forward, a 
subsidiary of the National Multiple Sclerosis Society, has formally 
decided to collaborate with and endorse Accelerated Cure Project's MS 
repository.  Specific details regarding what this collaboration will 
entail will follow.


 >>> Events

Detailed information about all of our recent events can be found on
our web site:
http://www.acceleratedcure.org/events/calendar.php

o September 20, Albuquerque, NM: Join us for Accelerated Cure 
Project's first jazz concert, "Healing, Harmony, & Heart" this 
fall!  Check out all the details:

   http://www.acceleratedcure.org/events/eventpages/20090920_JazzHHH.php

o October 5-11, Bay Area, CA: The Tyler Hamilton Foundation and 
Accelerated Cure Project are teaming up again for MS Global 2009!  25 
riders will embark on a multi-day cycling event in Northern 
California with US Pro Cycling Champion and Olympic gold medalist, 
Tyler Hamilton, as they raise funds to fight MS.
   **We have a few slots still open for RIDERS! Email 
jane at acceleratedcure.org for more info!**

http://www.acceleratedcure.org/events/eventpages/20091005_thf.php

o October 10, Cincinnati, OH: We're excited to announce the 4th 
Annual Canine Happy Hour to benefit Accelerated Cure Project. Mark 
your calendar and stay tuned for more details!

http://www.acceleratedcure.org/events/eventpages/20091010_k9hh.php

o October 17, Boston, MA:  **NEW - DON'T MISS THIS**  Join us for our 
Inaugural 'Opening Doors' Symposium and Recognition Dinner.  Along 
with a cocktail reception, dinner, silent and live auctions, and 
music, we'll be highlighting the accomplishments of key supporters 
and announcing the future vision of our organization. For details, see link:
   http://www.acceleratedcure.org/events/eventpages/20091017_recognition.php

o October 25, Washington, DC: Accelerated Cure Project has received 
25 charity numbers for the Marine Corps Marathon in October.  This is 
your chance to run one of the most beautiful (and flattest) marathons 
in the country while raising funds for a great cause.  Interested 
runners can join this fantastic team by simply emailing 
erin at acceleratedcure.org!
   http://www.acceleratedcure.org/events/eventpages/20091025_marinecorp.php

o October 25, Arlington, MA: Our longest running volunteer event, 
Sing to Cure MS, has changed its name in its 7th year to "Music To 
Cure MS." Members of Boston Lyric Opera, Opera Boston, and other 
classical singers and musicians donate their glorious 
talents.  Please join us for the chance to win gift certificates and 
snack on refreshments while enjoying a concert to cure MS!  Website 
coming soon.

o November 7, Derry, NH: Save the date for the 3rd Annual Dance to 
Cure MS at the Brookstone Events Center!  Dance to Cure MS is a 
fabulous night out for adults to socialize, dance, and eat, but most 
importantly to give hope to those who have MS by raising money for 
Accelerated Cure Project.

http://www.acceleratedcure.org/events/eventpages/20091107_dance.php

o November 20, Chicago, IL: Dust off your flashiest footwear and save 
the date for the "Hello Stiletto Shoe Ball," a black tie evening of 
live music, dancing, and fashion taking place at Chicago's Holiday 
Inn at Mart Plaza.

http://www.acceleratedcure.org/events/eventpages/20091120_shoeballchi.php


 >>> Previous Events

o May 9, Cincinnati, OH: The "2009 Walk to Accelerate the Cure" at 
Lunken Playfield was a great success!  Participants and supporters 
raised over $6,000 for the fight against Multiple Sclerosis!

o May 9, Somerville, MA: The Medeiros Family had another fun and 
successful evening at their 7th Annual Sports Scholarship and 
Multiple Sclerosis Research Fundraiser Party in loving memory of 
Edmund Medeiros.

o May 30, Waltham, MA: Thank you to all who participated in and/or 
supported our 8th Annual Hunt to Cure MS.  This year's clues made for 
some extremely funny pictures, and it was great to have David Brown 
of Channel 5 News kick off the event as our emcee.  Together, we 
raised over $16,000!  For pictures, click here:
http://www.acceleratedcure.org/events/eventpages/20090530_hunt.php#Start


 >>> Volunteers Reporting Time Last Month

o Admin
    Jane Shapiro
    Janice O'Donnell
    Joyce Ananian
    Mike Ahern
    William Senne

o Community Building
    Pat Phelps
    Janet Weinberg
    Peter Wolf

o Dance to Cure MS
    Deb DuFault
    Ann Cabot

o Cincinnati Happy Hour
    Debbie Mann
    Jodi Koehler
    Jane Harter
    Christina Urbanowicz

o Let's Bag MS
    Debbie Mann
    Susie Keller
    Maggie Wolf
    Nancy Whitney

o Hunt to Cure MS
    Meghan Cronin
    Matt Wilder
    Steve Brown
    Lisa Sargeant
    Jen Downing
    Rebecca Petersen
    Theresa Grenier
    Maggie Phelan
    Shannon Delaney
    Kevin Nolan
    Nick Brown
    Elizabeth Dougherty
    Jacob Gable
    William Senne
    Tracy Lambert
    Micah Ulrich
    Janelle Lenhoff
    Diane Rogers
    Christine Corbitt
    Ed Cronin

o Recognition Dinner 2009
    Lori Hannay
    Carolyn Potts
    Phyllis Baron
    David Blohm
    Mary Blohm
    Steven Kanner
    Linda Kanner
    Gabe d'Annunzio
    Michele Van Leer
    Jill McGaffigan
    Shawn LaVana

o System Administration
    Peter Schmidt
    Dave Baker

o MJS Scholarship Program
    Rick Szczepanski

o Music to Cure MS
    Marion Leeds Carroll

o The Wellness Resolution
    Cher Kore
    Ama Allara

o Medeiros Family Fundraiser
    Nancy Medeiros
    Judy Medeiros

o New Mexico Jazz Concert
    Eileen Devereux
    Tommy Gearhart

o MS Global 2009
    Bill Hamilton
    Sarah Nels
    Erik Schmidt

o Cincinnati Walk
    Linda Como
    Jack Ankenbauer

o Young Professionals Group
    Kevin Nolan
    Theresa Grenier
    Vassar Pierce
    David Rubin
    Carson Lappetito
    Chris Beaman
    Dan Hopkins

o Yoga Mala for MS
    Shannon Delaney

o Hello Stiletto Shoe Ball - Chicago
    Sandra Aussem
    Melissa O'Shea
    Melanie Aussem-Walk
    Bridget Carroll
    Alicia Geisler
    Rashida Jones
    Stephen Huntley
    Debbie Revenaugh
    Judy Schultz
    Jackie Nakumura
    Joan Luedke

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