[Accelerated Cure Project Status] status for the month of April 2009

[Art Mellor]

Accelerated Cure Project informal status for the month of April 2009

Information on our other mailing lists and unsubscribing is at the
bottom of this message.

Thanks for all your positive feedback last month - we'll keep the
monthly statuses coming!

>>> Joining/Leaving Us Last Month

o Erin Fitzgerald joined us last month as our new Special Events
  Coordinator. You can read more about her here:

  http://www.acceleratedcure.org/about/people.php?section=2&id=93

o Melissa O'Shea & Sarah Nels (former employees) are both back doing
  some part-time consulting for us as we ramp up our Major Gift
  campaign. 

>>> Research

Repository:

o 34 new subjects enrolled (25 MS, 3 NMO, 2 TM, 4 controls) in the
  repository during the month of April to result in a total of 1540
  subjects.  Also, nine follow-up visits were conducted to result in a
  total of 48 now completed.

  http://www.acceleratedcure.org/repository/status.php

o We distributed 15 serum samples (10 NMO, 5 control) to Dr. Alan
  Verkman from UCSF who is studying the role of aquaporin-4 and
  antibodies to this protein in NMO.

  http://www.acceleratedcure.org/repository/research.php

o We officially kicked off our collaboration with diagnostics
  developer Diogenix, with whom we are working to enroll specific
  categories of subjects.

o Hollie, Art and Sara met with Alberto Ascherio and Claire Simon to
  discuss a project they have proposed that involves using repository
  samples.

o Hollie and Sara met with Ben Greenberg to discuss ideas for the
  future development of the repository.

Other Scientific Efforts:

o Art and Hollie traveled to Seattle for the annual meeting of the
  American Academy of Neurology where they attended the scientific
  presentations and met with a number of people. Their notes are
  available here:

  http://msnews.acceleratedcure.org/node/3519

o Sara attended a conference called "Building Linked Web Communities
  in Biomedicine to Accelerate Research."


>>> Education

o MSNews continues with daily updates on what's happening in MS:

  http://msnews.acceleratedcure.org

>>> Community Building

o Erin and Kristin attended the Volunteer Expo at Copley Plaza on
  Thursday, April 16th and were able to talk to prospective volunteers
  about our mission and volunteer opportunities.

o Randi Southwick who will be organizing a "Sipping for Diamonds"
  component of the October 17th, "Opening Doors" Recognition Dinner.

o Volunteer Carrie Bryant got us mentioned in the Middlebury press:

  http://www.middlebury.edu/about/pubaff/news_releases/2009/pubaff_633765326326187021.htm


o As always, a few more T-shirt pictures are available:

  http://www.acceleratedcure.org/events/tshirt.php

>>> Operations

o Our 2008 Annual Report is now available.  View it online here: 

  http://www.acceleratedcure.org/downloads/acp-annualreport-2008.pdf

o Our 2008 Audit fieldwork is complete.  The audited financials will 
  be available soon on our web site.

>>> Fundraising

o Art and Debbie Mellor hosted the Marathon pre-party for our runners
  and their families.

o Carey Peabody and Ed Isaaks held a cultivation event at their home
  in Redwood City, CA. Thanks guys!

o Mary Lou Bailey completed her Letter Writing Campaign to benefit
  Accelerated Cure Project.  To personalize your own letter template
  to raise funds & awareness, email erin-letter09 at acceleratedcure.com

>>> Recent Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php

o April 20, Boston, MA: Our 2009 Boston Marathon Team worked extremely
  hard to fundraise and train!  We had 13 dedicated runners this year
  who teamed up to raise almost $60,000 for Accelerated Cure Project!

o April 26, Mountain View, CA: Ann Assarsson, soprano, and Steven
  Moellering, piano, held "Songs of Hope," a Spring vocal and piano
  recital at Masonic Hall to raise funds for the Accelerated Cure
  Project and accelerate the fight against MS!

>>> Upcoming Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php

o May 9, Cincinnati, OH: Come walk (or run) with Accelerated Cure
  Project supporters at the "2009 Walk to Accelerate the Cure" at
  Lunken Playfield to pull together and raise $$$ for the fight
  against Multiple Sclerosis! Register or donate at the link below:

  http://www.acceleratedcure.org/events/eventpages/20090509_walk.php

o May 9, Somerville, MA: Get ready for The Medeiros Family 7th Annual
  Sports Scholarship and Multiple Sclerosis Research Fundraiser Party
  in loving memory of, Edmund Medeiros. The drawing and silent auction
  will feature items from local restaurants, sporting stores, and
  more.  Wear your dancing shoes!

  http://www.acceleratedcure.org/events/eventpages/20090509_medeiros.php

o May 30, Waltham, MA: REGISTER for our 8th ANNUAL SCAVENGER HUNT!
  New this year: home base will be the DoubleTree Guest Suites,
  Waltham.  Get your family, friends, and coworkers together to form
  teams of 4.  All details are at the link below!  You don't want to
  miss this -- the clues are even more creative, the prizes are
  bigger, and we're throwing a *huge* party after the Hunt.

  http://www.acceleratedcure.org/events/eventpages/20090530_hunt.php

o September 20, Albuquerque, NM: Join us for Accelerated Cure
  Project's first jazz concert, "Healing, Harmony, & Heart" this Fall!
  Check out all the details:

  http://www.acceleratedcure.org/events/eventpages/20090920_JazzHHH.php

o October 5-11, Bay Area, CA: The Tyler Hamilton Foundation and
  Accelerated Cure Project are teaming up again for MS Global 2009!
  25 riders will embark on multi-day cycling event in Northern
  California with US Pro Cycling Champion and Olympic gold medalist,
  Tyler Hamilton, as they raise funds to fight MS.

  **We're still looking for RIDERS! Email
    jane-thf09 at acceleratedcure.com for more info!**

  http://www.acceleratedcure.org/events/eventpages/20091005_thf.php

o October 17, Boston, MA: Join us for our Inaugural 'Opening Doors'
  Recognition Dinner and Gala!  Along with a dazzling gala including a
  VIP reception, dinner, silent and live auctions, and music, this
  event will highlight the accomplishments of key supporters of
  Accelerated Cure Project for MS. For details, see link:

  http://www.acceleratedcure.org/events/eventpages/20091017_recognition.php

o October 25, Washington, DC: Accelerated Cure Project has received 25
  charity numbers for the Marine Corps Marathon in October.  This is
  your chance to run one of the most beautiful (and flattest)
  marathons in the country while raising funds for a great cause.
  Interested runners can join this fantastic team by simply emailing
  erin-mcm09 at acceleratedcure.com

  http://www.acceleratedcure.org/events/eventpages/20091025_marinecorp.php

o October 25, Arlington, MA: For the first time in 7 years, Sing To
  Cure MS will be changing it's name to "Music to Cure MS" in order to
  appeal to a larger audience!  Members of Boston Lyric Opera, Opera
  Boston, and other classical singers and musicians donate their
  glorious talents; win gift certificates and snack on refreshments:
  enjoy a concert to cure MS!  Website coming soon.

o November 7, Derry, NH: Save the date for the 3rd Annual Dance to
  Cure MS at the Brookstone Events Center!  Dance to Cure MS is a
  fabulous night out for adults to socialize, dance and eat, but most
  importantly to give hope to those who have MS by raising money for
  the Accelerated Cure Project.

  http://www.acceleratedcure.org/events/eventpages/20091107_dance.php

o November 20, Chicago, IL: Save the date for the Hello Stiletto "Shoe
  Ball" at the Holiday Inn Chicago Mart Plaza, a black tie evening of
  footwear, fashion, and fun to benefit Accelerated Cure Project!
  Website coming soon.

o November 21, Waltham, MA: Save the date for the 2009 Accelerated
  Cure Project Annual Event.  After such a great experience with last
  year's new location, we will definitely be returning to the
  DoubleTree Guest Suites in Waltham to celebrate another year of
  great progress in accelerating the cure!

  http://www.acceleratedcure.org/events/eventpages/20091121_acpevent.php


>>> Volunteers Reporting Time Last Month

o Contributed Goods & Services
  Arena Coaching
  Beverly Davidson
  Big City Restaurant
  Clockwork Design Group, Inc
  Emerald Necklace Martial Arts & Yoga
  EMS
  Fuze Beverages
  Jeff Lewitzky
  Kameleon Healing Aromatherapy
  Mail Perfect, Inc.
  Mark Allara
  Milano Salon
  Milano Salon
  Red Spot Printing
  Rock City Body
  Staples
  The Total Wellness Clinic
  Vermont Soapworks
  Yelp.com

o Admin
  William Senne
  Kelly Novak
  Jen Downing
  Jane Shapiro
  Mike Ahern

o Boston Marathon 2009
  Zach Natale
  Michele Van Leer
  Phil Harrell
  Michael Grant
  Justin Obey
  Doug Hull
  Carol Rose
  Scott MacLeod
  Greg Mastel
  David Hanthorn
  Mark Coggeshall
  Stephanie Mahoney

o Community Building
  Pat Phelps

o Dance to Cure MS
  Deb DuFault
  Ann Cabot

o Cincinnati Happy Hour
  Debbie Mann

o General Fundraising
   Jeff Shapiro
   Mary Lou Bailey

o Let's Bag MS
  Debbie Mann
  Susie Keller
  Maggie Wolf
  Nancy Whitney

o Hunt to Cure MS
  Meghan Cronin
  Matt Wilder
  Steve Brown
  Lisa Sargeant
  Jen Downing
  Rebecca Petersen
  Theresa Grenier
  Maggie Phelan
  Shannon Delaney
  Kevin Nolan

o Recognition Dinner 2009
  Lori Hannay
  Carolyn Potts
  Phyllis Baron
  David Blohm
  Mary Blohm
  Steven Kanner
  Linda Kanner
  Gabe d'Annunzio
  Michele Van Leer
  Jill McGaffigan

o System Administration
  Peter Schmidt
  Dave Baker

o MJS Scholarship Program
  Rick Szczepanski

o Music to Cure MS
  Marion Leeds Carroll

o The Wellness Resolution
  Cher Kore
  Ama Allara
  William Senne

o Medeiros Family Fundraiser
  Nancy Medeiros
  Judy Medeiros

o New Mexico Jazz Concert
  Eileen Devereux
  Tommy Gearhart

o MS Global 2009
  Bill Hamilton
  Sarah Nels
  Erik Schmidt

o Cincinnati Walk
  Linda Como
  Jack Ankenbauer

o Songs of Hope 2009
  Ann Assarsson

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