[Accelerated Cure Project Status] informal status for the month of March 2009

[Art Mellor]

Accelerated Cure Project informal status for the month of March 2009

Information on our other mailing lists and unsubscribing is at the
bottom of this message.

Thanks for all your positive feedback last month - we'll keep the
monthly statuses coming!

>>> Research

Repository:

o 32 new subjects were enrolled last month (16 MS, 8 NMO, 2 TM, 6 
  controls) to result in a total of 1,504 subjects.  Eight follow-up 
  visits were also conducted, giving a total of 39 now completed.

  http://www.acceleratedcure.org/repository/status.php

o Beth Israel Deaconess (Boston) and The Ohio State University each 
  enrolled their first subject!

o We sent 987 samples (636 MS, 351 control) to Dr. Julius Birnbaum at
  Johns Hopkins University, and also sent follow-up data sets to two
  of our sample users.

o We approved a new sample request from Dr. Alan Verkman of UCSF who 
  asked for NMO and control samples.  We also received a new request for 
  samples from a group located in Germany.

o We received another data set from a project that used our samples
  and questionnaire data.  Dr. Phil De Jager analyzed our samples for
  genes associated with the risk of MS or hypothesized to affect the
  severity of the disease.  This study is #8 in our list of supported
  research:

  http://www.acceleratedcure.org/repository/research.php

o We continued to work with Diogenix and the Guthy-Jackson Charitable 
  Foundation on sample collection activities.

Other Scientific Efforts:

o Hollie and Art attended a talk given by Dr. Daniel Pelletier from UCSF 
  about imaging and genetics in MS.

>>> Education

o MSNews is back in action - daily updates on what's happening in MS:

  http://msnews.acceleratedcure.org

>>> Community Building

o We had meetings with the following people:
  - Carolyn and Seth met with Dave and Mary Blohm who have agreed to 
    chair the October 17th, 2009 Recognition Dinner
  - Seth, Jane and Carolyn met with Jennifer Nicholson, Hyatt Recency 
    Boston, to finalize the location for the Recognition Dinner
  - Dave Blohm, Seth and Carolyn attended the MS Society's Milestones 
    Gala as hosts of Douglas Bryant, Wells Fargo Bank

o Volunteers Marion Leeds-Carroll and Bob Mellor got us mentioned in
  the Arlington Advocate and Bermuda Royal Gazette:

  http://www.acceleratedcure.org/news/bcp.php

o Our press release regarding the opening of the Beth Israel
  repository collection site:

  http://www.acceleratedcure.org/news/pr/20090306_bidmc.php

o Art and Hollie met with Donna Kelley and Carl Hedberg at Babson 
  College to provide information for a business school case they plan to 
  write about Accelerated Cure Project.

o Our Spring newsletter is now available online here: 

  http://www.acceleratedcure.org/downloads/acp-update-vol0801.pdf

o As always, a few more T-shirt pictures are available:

  http://www.acceleratedcure.org/events/tshirt.php

>>> Operations

o We signed a new lease extending our stay at the current location by
  3 more years. Thanks to Joe Sciolla at CresaPartners for negotiating
  on our behalf.

o Kristin has been learning enough HTML to take over posting of new
  events to our web site, making Art very happy :-)

>>> Fundraising

o Accelerated Cure Project's Board meeting was March 23, 2009.  The 
  Board approved the hired of Capstone Services Group to move forward 
  with a planning/feasibility study

>>> Recent Events

o March 6: The "Glow and Behold Enchanted Winter Ball" was a great 
  success, raising $15,000.  Our thanks to Hello Stiletto Shoe Club, 
  Genevieve Boston, shoe designer Kristina Kozak, and the Ritz Carlton 
  in Boston, MA for organizing such a great evening!  You can see 
  pictures from the event here:

  http://www.shoeclub.us/events-archive.php?item=2009-03-06-boston#photos

>>> Upcoming Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php

o April 20, Boston, MA: Our 2009 Boston Marathon Team has been working
  hard to fundraise and train!  We have at 13 dedicated runners this
  year -- visit the link below to read about them and support their
  efforts to raise money for Accelerated Cure Project!  Come cheer
  with us at Mile 20 during the race (details at link below)!!

   http://www.acceleratedcure.org/events/eventpages/20090420_marathon.php

o April 26, Mountain View, CA: Come enjoy Ann Assarsson, soprano, and
  Steven Moellering, piano, in A Spring Vocal and Piano Recital at
  Masonic Hall to raise funds for the Accelerated Cure Project and
  accelerate the fight against MS! Details below:

  http://www.acceleratedcure.org/events/eventpages/20090426_songshope.php

o May 2, Boston, MA: Join Boston Wine School and Hello Stiletto at
  they meet up for a delicious evening of wine tasting.  Wine, Women
  and ACP!  Join us for the evening as we toast the women of the wine
  industry, and raise money to support the Accelerated Cure Project.
  RSVP now!

  http://www.acceleratedcure.org/events/eventpages/20090502_winetasting.php

o May 9, Cincinnati, OH: Come walk (or run) with Accelerated Cure
  Project supporters at the "2009 Walk to Accelerate the Cure" at
  Lunken Playfield to pull together and raise $$$ for the fight
  against Multiple Sclerosis! Register or donate at the link below:

  http://www.acceleratedcure.org/events/eventpages/20090509_walk.php

o May 9, Somerville, MA: Get ready for The Medeiros Family 7th Annual
  Sports Scholarship and Multiple Sclerosis Research Fundraiser Party
  in loving memory of, Edmund Medeiros. The drawing and silent auction
  will feature items from local restaurants, sporting stores, and
  more.  Wear your dancing shoes!

  http://www.acceleratedcure.org/events/eventpages/20090509_medeiros.php

o May 30, Waltham, MA: Register TODAY for our 8th ANNUAL SCAVENGER
  HUNT!  New this year: home base will be the DoubleTree Guest Suites,
  Waltham.  Get your family, friends, and coworkers together to form
  teams of 4.  All details are at the link below!  You don't want to
  miss this -- the clues will be even more creative, the prizes will
  be bigger, and we're throwing a *huge* party after the Hunt.

  http://www.acceleratedcure.org/events/eventpages/20090530_hunt.php

o September 20, Albuquerque, NM: Join us for Accelerated Cure 
  Project's first jazz concert, "Healing, Harmony, & Heart" this 
  Fall!  Website with details coming soon!

o October 5-11, Bay Area, CA: The Tyler Hamilton Foundation and
  Accelerated Cure Project are teaming up again for MS Global 2009!
  25 riders will embark on multi-day cycling event in Northern
  California with US Pro Cycling Champion and Olympic gold medalist,
  Tyler Hamilton, as they raise funds to fight MS.

  http://www.acceleratedcure.org/events/eventpages/20091005_thf.php

o October 17, Boston, MA: Join us for our Inaugural 'Opening Doors'
  Recognition Dinner and Gala!  Along with a dazzling gala including a
  VIP reception, dinner, silent and live auctions, and music, this
  event will highlight the accomplishments of key supporters of
  Accelerated Cure Project for MS. For details, see link:

  http://www.acceleratedcure.org/events/eventpages/20091017_recognition.php

o October 25, Washington, DC: Accelerated Cure Project has received 25
  charity numbers for the Marine Corps Marathon in October.
  Interested runners can join the team by simply paying the small
  entry fee and pledging to raise a minimum of $1500 for Accelerated
  Cure Project -- see link for details on how to sign up!

  http://www.acceleratedcure.org/events/eventpages/20091025_marinecorp.php

o November 7, Derry, NH: Save the date for the 3rd Annual Dance to
  Cure MS at the Brookstone Events Center!  Dance to Cure MS is a
  fabulous night out for adults to socialize, dance and eat, but most
  importantly to give hope to those who have MS by raising money for
  the Accelerated Cure Project.

  http://www.acceleratedcure.org/events/eventpages/20091107_dance.php

o November 21, Waltham, MA: Save the date for the 2009 Accelerated
  Cure Project Annual Event.  After such a great experience with last
  year's new location, we will definitely be returning to the
  DoubleTree Guest Suites in Waltham to celebrate another year of
  great progress in accelerating the cure!

  http://www.acceleratedcure.org/events/eventpages/20091121_acpevent.php


>>> Volunteers Reporting Time Last Month

o Contributed Goods & Services
  AirTran Airways
  Anonymous
  Artemis Woman
  Barneys New York
  Bina Osteria
  Body Wise Therapeutic Massage
  Cabot Creamery
  California Closets
  Clockwork Design Group, Inc
  Cordani
  Cosmosis
  CVS Caremark
  District Restaurant & Lounge
  DSW
  Euphoria Esthetics
  Faccia Bella
  Fuze Beverages
  Genevieve Boston
  Green & Black's Chocolate
  Harpoon Brewery
  Head of the Charles Regatta
  Lancome
  LEGWORK Video LLC
  Leokadia
  Lily Artist Management
  Lucky's Lounge
  Macy's
  Motives by Loren Ridinger
  Sarra
  ShoeBuy.com Inc.
  Slade's Bar & Grill
  Sofft Shoe Company
  The Briar Group
  The Capital Grille
  The Ritz-Carlton
  W.J.Deutsch & Sons LTD.

o Admin
   William Senne
   Kelly Novak
   Michael Rudzinsky

o Boston Marathon 2009
   Zach Natale
   Michele Van Leer
   Phil Harrell
   Michael Grant
   Justin Obey
   Doug Hull
   Carol Rose
   Scott MacLeod
   Greg Mastel
   David Hanthorn
   Mark Coggeshall
   Stephanie Mahoney

o Community Building
   Pat Phelps
   Leon Phelps
   Marion Leeds Carroll

o Dance to Cure MS
   Deb DuFault
   Ann Cabot

o Let's Bag MS
   Debbie Mann
   Susie Keller
   Maggie Wolf
   Nancy Whitney

o System Administration
   Peter Schmidt
   Dave Baker

o MJS Scholarship Program
   Rick Szczepanski

o Shoe Ball
   Melissa O'Shea
   Kristina Kozak
   Jennifer Sheehan
   Shelley Hachman
   Dave Rudzinsky
   Marie Rudzinsky
   Kevin Nolan
   Sandra Aussem
   Stephen Madero
   Amanda Viciana
   Anne Vallely and the Fashion Students of Lasell College

o Sing to Cure MS
   Marion Leeds Carroll

o The Wellness Resolution
   Cher Kore
   Ama Allara
   William Senne

o Scavenger Hunt 2009
   Kevin Nolan
   Meghan Cronin
   Matt Wilder
   Lisa Sargeant
   Steve Brown
   Gabe d'Annunzio
   Jennifer Downing
   Theresa Grenier
   Shannon Delaney

o Medeiros Family Fundraiser
   Nancy Medeiros
   Judy Medeiros

o New Mexico Jazz Concert
   Eileen Devereux
   Tommy Gearhart

o MS Global 2009
   Bill Hamilton
   Sarah Nels
   Erik Schmidt

o Cincinnati Walk
   Linda Como
   Jack Ankenbauer

o Songs of Hope 2009
   Ann Assarsson


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