[Accelerated Cure Project Status] status for the month of February 2009

Art Mellor art at acceleratedcure.org
Mon Mar 16 08:44:03 EDT 2009


Accelerated Cure Project informal status for the month of February 2009

Information on our other mailing lists and unsubscribing is at the
bottom of this message.

Thanks for all your positive feedback last month - we'll keep the
monthly statuses coming!

>>> Joining/Leaving Us Last Month

  We are sad to report that we have decided to close down the San
  Francisco office. Sarah Nels has resigned, but remains on our Board
  of Advisors. We'll still be doing things in the Bay area, that won't
  change.

>>> Research

Repository:

o 37 new subjects were enrolled in February (19 MS, 10 NMO, 1 TM, 7
  controls) to result in a total of 1454 subjects.  In addition, 11
  follow-up visits were conducted, which gives us a total of 31 now
  completed.
  http://www.acceleratedcure.org/repository/status.php

o Two new sites have opened, which will give more people the chance to
  participate!  Beth Israel Deaconess (Boston) and The Ohio State
  University (Columbus) are now open for enrollment.  See our web site
  for contact information if you are interested in participating in
  the repository at any of our sites:
  http://www.acceleratedcure.org/repository/contact.php

o Our collaboration with the Guthy-Jackson Charitable Foundation to
  enroll NMO subjects into our repository is going very well, and we
  are on track to enroll 20 subjects by mid-March.

o As part of our involvement in an industry association (ISBER)
  work-group, Sara and Hollie are polling other repositories about
  their cost-recovery policies and gathering information about funding
  sources.

o Hollie spoke with staff at Faster Cures' Biobank Central to tell them 
  about our repository and what makes it so unique and valuable.

>>> Community Building

o We had meetings with the following people:
  - Hollie met with Nicole Mutschler of drug company Questcor to explain 
    what we do and hear about their community outreach programs.

o As always, a few more T-shirt pictures are available:
  http://www.acceleratedcure.org/events/tshirt.php

>>> Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php

o April 20, Boston, MA: Our 2009 Boston Marathon Team has been working
  hard to fundraise and train!  We have at 13 dedicated runners this
  year -- visit the link below to read about them and support their
  efforts to raise money for Accelerated Cure Project!  Come join our
  cheering section at Mile 20 during the race!!

  http://expansion.acceleratedcure.org/

o May 2, Boston, MA: Join Boston Wine School and Hello Stiletto at
  they meet up for a delicious evening of wine tasting.  Wine, Women
  and ACP!  Join us for the evening as we toast the women of the wine
  industry, and raise money to support the Accelerated Cure Project.
  Details and RSVP information coming to our website shortly!

o May 9, Somerville, MA: Get ready for The Medeiros Family 7th Annual
  Sports Scholarship and Multiple Sclerosis Research Fundraiser Party
  in loving memory of, Edmund Medeiros. The drawing and silent auction
  will feature items from local restaurants, sporting stores, and
  more.  Wear your dancing shoes!  Website coming soon...

o May 30, Waltham, MA: It's time for our 8th ANNUAL SCAVENGER HUNT!
  New this year: home base will be the DoubleTree Guest Suites,
  Waltham.  Get your family, friends, and coworkers together to form
  teams of 4.  Log on to the web page below, sign up your team, and
  start fundraising to participate!  You don't want to miss this --
  the clues will be more creative, the prizes will be bigger, and
  we're throwing a huge party after the Hunt.

  http://www.firstgiving.com/acceleratedcure  (Registration opening soon!!)

o October 17, Boston, MA: Accelerated Cure Project's Recognition
  Dinner Gala.  2009 will be the inaugural year of this, the largest
  scale, event for Accelerated Cure Project.  Held at the Hyatt Boston
  and featuring key executives and their clients, this Dinner plans to
  create a buzz.

o November 7, Derry, NH: Save the date for the 3rd Annual Dance to
  Cure MS at the Brookstone Events Center!  Dance to Cure MS is a
  fabulous night out for adults to socialize, dance and eat, but most
  importantly to give hope to those who have Multiple Sclerosis by
  raising money for the Accelerated Cure Project.

o November 21, Waltham, MA: Save the date for the 2009 Accelerated
  Cure Project Annual Event.  After such a great experience with last
  year's new location, we will definitely be returning to the
  DoubleTree Guest Suites in Waltham to celebrate another year of
  great progress in accelerating the cure!

>>> Volunteers Reporting Time Last Month

o Contributed Goods & Services
  Clockwork Design Group, Inc

o Admin
  William Senne
  Kelly Novak
  Michael Rudzinsky

o Boston Marathon 2009
  Zach Natale
  Michele Van Leer
  Phil Harrell
  Michael Grant
  Justin Obey
  Doug Hull
  Carol Rose
  Scott MacLeod
  Greg Mastel
  David Hanthorn
  Mark Coggeshall
  Stephanie Mahoney

o Community Building
  Pat Phelps

o Dance to Cure MS
  Deb DuFault
  Ann Cabot

o Let's Bag MS
  Debbie Mann
  Susie Keller
  Maggie Wolf
  Nancy Whitney

o IT Maintenance
  Peter Schmidt
  Dave Baker

o MJS Scholarship Program
  Rick Szczepanski

o Volunteer Initiative Program
  Debbie Urbanik

o Sense of Purpose
  Bob Mellor

o Shoe Ball
  Melissa O'Shea
  Kristina Kozak
  Jennifer Sheehan
  Shelley Hachman

o Sing to Cure MS
  Marion Leeds Carroll

o The Wellness Resolution
  Cher Kore
  Ama Allara
  William Senne

o Scavenger Hunt 2009
  Kevin Nolan
  Meghan Cronin
  Matt Wilder
  Lisa Sargeant
  Steve Brown
  Gabe d'Annunzio
  Jennifer Downing

o Medeiros Family Fundraiser
  Nancy Medeiros
  Judy Medeiros

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