[Accelerated Cure Project Status] Informal status for September

[Art Mellor]

Accelerated Cure Project informal status for the month of September 2008

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bottom of this message.

>>> Joining/Leaving Us Last Month

o Still the same old great gang of MS Busters

>>> Research

MS Repository:

o We have now enrolled 1320 subjects through our six clinical sites.

  http://www.acceleratedcure.org/repository/status.php

o Art, Sara and Hollie met with company leaders from Diogenix to
  review the results from their analysis of our samples and to discuss
  future work together.

o Sara and Kristin revised the web page describing research projects
  supported by our repository.  To learn about all the important work
  we are enabling, please visit this site at:
  http://www.acceleratedcure.org/repository/research.php

o We coordinated with our sample storage vendor Seracare about
  shipping samples to researchers in Israel (Glycominds) and Australia
  (Dr. Gilles Guillemin), whose sample requests were recently
  approved.

o We approved a new request for samples and data from Dr. Tom Aune from 
  Vanderbilt University.

o We've fielded calls and emails from about 6 other diseases
  organizations who are realizing that creating a repository is the
  way to go and wanting to know about our experiences in doing that.

Other scientific projects:

* Hollie and Art attended the MS conference WCTRIMS (combination of
  ECTRIMS, ACTRIMS, and LACTRIMS) where they learned about MS research
  progress and met several colleagues.  You can read their write-up
  here:

  http://msnews.acceleratedcure.org/node/3403

o New versions of our Cure Map phase 2 documents on infectious agents
  are now available for download:
  http://www.acceleratedcure.org/downloads/phase2-pathogens-analysistables.pdf
  http://www.acceleratedcure.org/downloads/phase2-pathogens-studies.xls

>>> Education

o Poll - What was your exposure to animals growing up?

  http://msnews.acceleratedcure.org/node/3404

o We continue our daily MS News updates

  http://msnews.acceleratedcure.org

>>> Community Building

o Do you live in New England and need help being successful in your job -- or
  finding a new job -- because MS makes WORKING difficult for you?  The Kelly
  Packowski Foundation will fund 6 months of career coaching with Rosalind
  Joffe, http://cicoach.com ,  a career coach who specializes in working with
  people with chronic illness.  There is currently one slot available.

  *** APPLY TO: rosalind at cicoach.com

o Jane and Seth attended "Melody on the Hill", the ground breaking
  ceremony for the Leonard Florence Center ALS and MS Greenhouse on
  Wednesday September, 17

o Jane and Seth attended Biogen's Patient Advocacy Conference on
  Friday September, 26 and had an overwhelming response from these
  advocates about the work we're doing and the progress we've made.

o Press

  Two volunteers got press about fundraising they did for us:

  http://www.acceleratedcure.org/news/bcp/20080923_vaildaily.php
  http://www.acceleratedcure.org/news/bcp/20080926_thecitizen.php

o As always, a few more T-shirt pictures are available:

  http://www.acceleratedcure.org/events/tshirt.php

>>> Upcoming Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php
 
o October 11, Cincinnati, OH: We're excited to announce the 3rd Annual
  Canine Happy Hour to Benefit Accelerate Cure Project. Mark your
  calendar and stay tuned for more details!

  http://www.acceleratedcure.org/events/eventpages/20081011_k9hh.php

o October 26, New York, NY: The International Multiple Sclerosis
  Management Practice and The Multiple Sclerosis Research Center of
  New York presents its Annual Multiple Sclerosis Patient Symposium.

  http://www.acceleratedcure.org/events/eventpages/20081026_mscnyc.php

o October 26, Arlington, MA: This year's grant from the MA Cultural
  Council makes the 6th Annual Sing To Cure MS Concert set-to-go!
  Members of Boston Lyric Opera, Opera Boston, and other classical
  singers donate their glorious talents; win gift certificates and
  snack on refreshments: enjoy a concert to cure MS!

  http://www.acceleratedcure.org/events/eventpages/20081026_sing.php

o November 7th - Save the date for the 2008 Accelerated Cure Project
  Annual Event San Francisco at the Sheraton Palo Alto Hotel in Palo
  Alto, CA. More details and RSVP:

  http://www.acceleratedcure.org/events/eventpages/20081107_acpeventsf.php

o November 7, Windham, NH: TICKET SALES OPEN for the 2nd Annual Dance
  to Cure MS, a fun night out for adults coming together to socialize,
  dance and eat, but most importantly to give hope and support to
  those who have Multiple Sclerosis. For details and tickets:

  http://www.acceleratedcure.org/events/eventpages/20081107_dance.php

o November 22, Waltham, MA: RSVP now for the 2008 Accelerated Cure
  Project Annual Event which will be held in a NEW LOCATION: The
  Doubletree Guest Suites in Waltham, MA.  See the website for more
  details and RSVP:

  http://www.acceleratedcure.org/events/eventpages/20081122_acpevent.php

o November 23, Easthampton, MA: Mark your calendars and grab your
  bikes for the 2nd Annual Nonotuck Cyclocross Race, part of the
  Accelerated Cure Project Cyclocross Series!  Registration coming
  soon.

  http://www.acceleratedcure.org/events/eventpages/20081123_cyclocross.php

o November 30, Palmer, MA: Get that bike cleaned up from last weekend
  and come back out for the Palmer Cyclocross Race to Cure MS, also
  part of the Accelerated Cure Project Cyclocross Series.  More
  details to come...

  http://www.acceleratedcure.org/events/eventpages/20081130_cyclocross.php

o January 10, Allston, MA: Come kick off your New Year's resolution
  and enjoy yoga, pilates, henna tattoos, massage therapy, make-up
  advice, aromatherapy, self-defense, and more at The Wellness
  Resolution.  New this year: after-party at Big City!

  http://www.acceleratedcure.org/events/eventpages/20090110_wellness.php


>>> Recent Events

o Dogs drank free at a Canine Happy Hour event on September 6th in San
  Francisco, CA and raised over $4,000 for Accelerated Cure Project.
  Special thanks to Mary Owen and Janet Clarkson for all of their
  help! Photos:

  http://www.acceleratedcure.org/events/eventpages/20080906_k9hh.php#Start

o Special thanks to the Tyler Hamilton Foundation for their generous
  donation of $50,000 for the creation of a seventh MS Repository
  collection in site in Colorado. Art and Sarah were on hand in Vail
  September 18th through the 21st to accept the donation from Tyler,
  his dad Bill, and the amazing cyclists of the MSGlobal 2008.  Photos
  here:

  http://www.acceleratedcure.org/events/eventpages/20080918_thf.php#Start

o Our friends at Carrot Top Records had a great time at their benefit
  concert for Accelerated Cure Project in celebration of their sweet
  16 the weekend of September 26-27.  We're waiting on finalized
  numbers - stay tuned for an update next month!


>>> Operations

o The Fall 2008 newsletter is complete and has been mailed out.  If
  you are not on our mailing list and would like to be, go here:

  http://www.acceleratedcure.org/about/joinemail.php

  See the online version of the newsletter here:

  http://www.acceleratedcure.org/downloads/acp-update-vol0703.pdf

>>> Volunteers Reporting Time Last Month

o Contributed Goods and Services August-September
  Clockwork Design Group, Inc.
  Sonia Teixeira
  Anonymous

o Sing to Cure MS
      Marion Leeds Carroll
      Lyman Opie
      Michael Zimmer
      Angeliki Theoharis

o Cyclocross Race Series
      Mark Stotz
      Jeff Papineau
      Michele Papineau

o Cincinnati Canine Happy Hour
      Debbie Mann
      Amy Groff
      Christina Urbanowicz
      Steve Rawlins

o Dance to Cure MS
      Deb DuFault
      Ann Cabot

o Community Building
      Martine Assaf
      Pat Phelps

o Wellness Resolution
       Cher Kore
       Ama Allara
       Ronnie Moore
       Nancy Finn

o Fundraising
      Brad Feld

o Donor Database Project
      Dave Kaffine

o Admin
      Kelly Novak
      Marie Rudzinsky
      William Senne

o Sense of Purpose
      Elena Morgenlender
      Bob Mellor

o UK Walk
      Andy Monk

o MissionFish
      Michael Weeks
      Bruce Frei

o Repository MRI Project
      Sue Ropiak

o ACP Rock Concerts
      Matt Langone
      Shawn Cheever
      Patrick Monaghan
      Kate Begani

o Annual Event Auction
      Debbie Mellor
      Jeff Shapiro
      Kelly Novak


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