[Accelerated Cure Project Status] status for the month of July 2008

[Art Mellor]

Accelerated Cure Project informal status for the month of July 2008

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>>> Joining/Leaving Us Last Month

o Still our same old selves

>>> Research

Repository:

o The first published paper using samples from our repository has been
  published. Genes influencing the severity of MS have been found:

  http://msnews.acceleratedcure.org/node/3301

o We have now enrolled 1146 participants into our repository.

o We approved two new requests:  a request for samples and data from 
  Glycominds, an Israeli company, and a request for data from St. John's 
  University in Minnesota.

o We sent out samples and data to several scientific teams this month:
  - We distributed samples and data from 889 subjects (cases and controls) 
    to University of California, Irvine.
  - We distributed data from all of the MS cases in the database to St. 
    John's University.
  - We distributed additional data to the Harvard School of Public Health.
  - Finally, we distributed additional data to the Broad Institute.

o We continued preparing for the longitudinal extension of the 
  repository, including discussing kit contents and user testing the 
  electronic data capture system.

Other Science Efforts:

o Sara had a call with Helena Judge Ellis to help facilitate a new 
  biobank being set up in Rhode Island.

o Our summer interns YingFei Li and Jasmine Park worked on repository 
  projects (adding MRIs to our database and performing an internal 
  evaluation of our operations) and Cure Map research (updating our 
  pathogens, nutrition, and mitochondrial DNA analyses).

>>> Education

o Poll - How many medications are you taking for your MS?

  http://msnews.acceleratedcure.org/node/3328

o We continue our daily MS News updates

  http://msnews.acceleratedcure.org

>>> Fundraising

o Our Summer Fellow, Elena, continues to work on developing leads for
  alternate fundraising strategies

o Thank you to the Montel Williams Foundation for MS for the grant we
  received for our Repository Program.  And thank you to Melissa
  O'Shea for making that possible by writing the grant proposal.

>>> Community Building

o We had meetings with the following people:
  - Alzforum/SWAN project regarding possible MS research info portal
  - Discussions with Novartis about pitching use of repository to them

o As always, a few more T-shirt pictures are available:

  http://www.acceleratedcure.org/events/tshirt.php

>>> Upcoming Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php
 
o August 24, Springfield, MA: Grab your bikes for the Blunt Park
   Cyclocross Race, part of the Accelerated Cure Project Cyclocross
   Series.  Register now!

   http://www.acceleratedcure.org/events/eventpages/20080824_cyclocross.php

o September 6 from 2pm - 5pm, San Francisco, CA:  Dogs drink free at
    Canine Happy Hour to raise funds for Accelerated Cure Project.

   https://www.acceleratedcure.org/events/eventpages/20080906_k9hh.php

o September 18 to September 21 - Tyler Hamilton Foundation MS Global
    2008 - a 500 mile cycling tour through Colorado with American
    professional bicycle rider and Olympic gold medalist Tyler Hamilton.

   https://www.acceleratedcure.org/events/eventpages/20080918_thf.php

o October 11, Cincinnati, OH: We're excited to announce the 3rd Annual
   Canine Happy Hour to Benefit Accelerate Cure Project. Mark your
   calendar and stay tuned for more details!

    http://www.acceleratedcure.org/events/eventpages/20081011_k9hh.php

o October 26, Arlington, MA: This year's grant from the MA Cultural
   Council makes the 6th Annual Sing To Cure MS Concert set-to-go!
   Members of Boston Lyric Opera, Opera Boston, and other classical
   singers donate their glorious talents; win gift certificates and
   snack on refreshments: enjoy a concert to cure MS!

   http://www.acceleratedcure.org/events/eventpages/20081026_sing.php

o November 7, Windham, NH: TICKET SALES OPEN for the 2nd Annual Dance to
   Cure MS, a fun night out for adults coming together to socialize,
   dance and eat, but most importantly to give hope and support to
   those who have Multiple Sclerosis. For details and tickets:

   http://www.acceleratedcure.org/events/eventpages/20081107_dance.php

o November 22, Waltham, MA: Save the date for the 2008 Accelerated
   Cure Project Annual Event which will be held in a NEW LOCATION: The
   Doubletree Guest Suites in Waltham, MA.  See the website for more
   details:

   http://www.acceleratedcure.org/events/eventpages/20081122_acpevent.php

o November 23, Easthampton, MA: Mark your calendars and grab your
   bikes for the 2nd Annual Nonotuck Cyclocross Race, part of the
   Accelerated Cure Project Cyclocross Series!  Registration coming
   soon.

   http://www.acceleratedcure.org/events/eventpages/20081123_cyclocross.php

o November 30, Palmer, MA: Get that bike cleaned up from last weekend
   and come back out for the Palmer Cyclocross Race to Cure MS, also
   part of the Accelerated Cure Project Cyclocross Series.  More
   details to come...

   http://www.acceleratedcure.org/events/eventpages/20081130_cyclocross.php

>>> Recent Events

o An MS Social in SF and a Rock Concert

>>> Operations

o All smooth - but if you really need a dose of Operation
  http://www.hasbro.com/default.cfm?page=ps_results&product_id=9468

>>> Volunteers Reporting Time Last Month

o Contributed Goods and Services
  Clockwork Design Group, Inc
  Mail Perfect, Inc.

o Sing to Cure MS
    Marion Leeds Carroll
    Gigi Patel
    Emily Becker
    Michael Zimmer

o Cyclocross Race Series
    Mark Stotz

o Cincinnati Canine Happy Hour
    Debbie Mann
    Amy Groff
    Christina Urbanowicz
    Peggy Shannon
    Steve Rawlins
    Sonia Teixeria

o Dance to Cure MS
    Deb DuFault

o Community Building
    Martine Assaf
    Pat Phelps

o Wellness Resolution
     Cher Kore
     Ama Allara

o Fundraising
     Ashley Mittman
     Brad Feld

o Admin
    Jane Shapiro
    Kelly Novak

o San Francisco Canine Happy Hour
    Katrina Lewis
    Sonia Teixeria

o MS Social
    Katrina Lewis
    Steven Johnson

o Sense of Purpose
    Will Adams

o UK Walk
    Andy Monk

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