[Accelerated Cure Project Status] status for the month of June 2008

[Art Mellor]

Accelerated Cure Project informal status for the month of June 2008

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>>> Joining/Leaving Us Last Month

o YingFei Li and Jasmine Park, both students at MIT, have joined us this 
  summer to work on repository and Cure Map projects.

o Elena Bryce comes to us as an Americorp Fellow to work on developing
  alternative fundraising strategies.

>>> Research

Repository:


o Our enrollment now stands at 1191 subjects who have donated samples 
  and data.

  http://www.acceleratedcure.org/repository/status.php

o We distributed samples (PaxGene for RNA) from 10 subjects (cases and 
  controls) to Diogenix, a company that is developing diagnostic techniques.

o We also distributed samples (DNA and RNA) from 20 MS subjects to a 
  researcher at NASA.

o Art and Hollie met with colleagues from Johns Hopkins and the Myelin
  Repair Foundation to talk about potentially adding brain samples to
  our collection.  While in Maryland, they also visited the SeraCare
  facility that is storing our samples to see our freezers and meet
  with the staff there.

o We formalized our cost recovery policy (what we charge users for 
  samples and data) and posted it on our web site.

o Our repository was acknowledged for the first time in a publication
  in the Journal of Neuroimmunology.

Cure Map:

o Our analysis of research into vaccination's potential effect on MS 
  risk, and the accompanying study database, are now posted and can be 
  found here:

  http://www.acceleratedcure.org/downloads/phase2-pathogens-vaccinations.pdf
  http://www.acceleratedcure.org/downloads/phase2-pathogens-vaccinations.xls

Other Science Efforts:

o Many of our staff have been participating in MRI studies, both in
  Boston and San Francisco. Everyone who doesn't MS is learning to
  appreciate how "fun" they can be.

>>> Education

o Poll - How satisfied are you with your MS doctor?

  http://msnews.acceleratedcure.org/node/3284

o We continue our daily MS News updates

  http://msnews.acceleratedcure.org

>>> Fundraising

o Please send your extra money you have lying around here:

  http://www.acceleratedcure.org/about/contribute.php

>>> Community Building

o Check out our new Volunteer Track program:

  http://www.acceleratedcure.org/affiliates/volunteer.php

o We had meetings with the following people:
  - Seth and Art met with the RI Biobank in Providence, RI
  - Sarah spoke at Serono's patient marketing seminar in San Francisco, CA
  - Sarah met with Dr. Joanne Cooper and staff at East Bay Physicians 
    Medical Group in Berkeley, CA
  - Volunteer Martine Assaf attended Teva's patient marketing seminar 
    in Quincy, MA

o As always, a few more T-shirt pictures are available:

  http://www.acceleratedcure.org/events/tshirt.php

>>> Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php
 
o July 13, Redmond, WA: The band Red, Red Meat has selected the
   Accelerated Cure Project as the beneficiary for the funds it raises
   at the Sub>Pop Records 20th Anniversary Festival.  Go cheer them on!

   http://www.acceleratedcure.org/events/eventpages/20080720_subpop.php

o August 24, Springfield, MA: Grab your bikes for the Blunt Park
  Cyclocross Race, part of the Accelerated Cure Project Cyclocross
  Series.  Register now!

  http://www.acceleratedcure.org/events/eventpages/20080824_cyclocross.php

o September 18 to Sunday 21 - Tyler Hamilton Foundation MS Global
  2008 - a 500 mile cycling tour through Colorado with American
  professional bicycle rider and Olympic gold medalist Tyler Hamilton.

    http://www.acceleratedcure.org/events/eventpages/20080917_thf.php

o October 11, Cincinnati, OH: We're excited to announce the 3rd Annual
  Canine Happy Hour to Benefit Accelerate Cure Project. Mark your
  calendar and stay tuned for more details!

   http://www.acceleratedcure.org/events/eventpages/20081011_k9hh.php

o October 26, Arlington, MA: This year's grant from the MA Cultural
  Council makes the 6th Annual Sing To Cure MS Concert set-to-go!
  Members of Boston Lyric Opera, Opera Boston, and other classical
  singers donate their glorious talents; win gift certificates and
  snack on refreshments: enjoy a concert to cure MS!

  http://www.acceleratedcure.org/events/eventpages/20081026_sing.php

o November 7, Windham, NH: Save the date for the 2nd Annual Dance to
  Cure MS, a fun night out for adults coming together to socialize,
  dance and eat, but most importantly to give hope and support to
  those who have Multiple Sclerosis.

  http://www.acceleratedcure.org/events/eventpages/20081107_dance.php

o November 22, Waltham, MA: Save the date for the 2008 Accelerated
  Cure Project Annual Event which will be held in a NEW LOCATION: The
  Doubletree Guest Suites in Waltham, MA.  See the website for more
  details:

  http://www.acceleratedcure.org/events/eventpages/20081122_acpevent.php

o November 23, Easthampton, MA: Mark your calendars and grab your
  bikes for the 2nd Annual Nonotuck Cyclocross Race, part of the
  Accelerated Cure Project Cyclocross Series!  Registration coming
  soon.

  http://www.acceleratedcure.org/events/eventpages/20081123_cyclocross.php

o November 30, Palmer, MA: Get that bike cleaned up from last weekend
  and come back out for the Palmer Cyclocross Race to Cure MS, also
  part of the Accelerated Cure Project Cyclocross Series.  More
  details to come...

  http://www.acceleratedcure.org/events/eventpages/20081130_cyclocross.php

>>> Recent Events

o May 31, Twinsburg, OH: Evan Cavanaugh, and his friend Patrick
  Flaherty held a "Kool-Aid for ACP" fundraiser in their neighborhood.
  Great work, boys!

o June 6, Swampscott, MA: Thank you to Hello Stiletto and Euphoria
  Esthetics for hosting a spa night with all proceeds benefiting
  Accelerated Cure Project.  Together, they raised almost $1,000!

  http://www.acceleratedcure.org/events/eventpages/20080606_euphoria.php

o June 8, Cambridge, MA: Cindy and Eric Elia held a yard sale and
  donated 50% of their proceeds to Accelerated Cure Project. Thanks
  for your generosity!

  http://www.acceleratedcure.org/events/eventpages/20080608_yardsale.php

>>> Operations

o The Summer 2008 newsletter is now in the mail.  To see an 
  online version, go here: 

  http://www.acceleratedcure.org/news/newsletter.php

  Not on our mailing list but want to be?  Sign up here: 
  http://www.acceleratedcure.org/about/joinemail.php

>>> Volunteers Reporting Time Last Month

o Sing to Cure MS
   Marion Leeds Carroll

o Cyclocross Race Series
   Mark Stotz

o Letter Writing Campaign
   Ann Cabot

o Hunt to Cure MS
   Jennifer Downing

o Canine Happy Hour
   Debbie Mann

o Dance to Cure MS
   Deb DuFault

o Community Building
   Martine Assaf

o Donor Database Project
    Dave Kaffine

o Wellness Resolution
    Cher Kore
    Ama Allara

o Repository Metrics Project
    Michele Parrish

o Fundraising
    Evan Cavanaugh
    Patrick Flaherty
    Cindy Elia
    Eric Elia
    Ashley Mittman
    Brad Feld

o Admin
   Jackie Bollens
   Kelly Novak

o San Francisco Canine Happy Hour 2008
   Katrina Lewis

o MS Social
    Katrina Lewis
    Steven Johnson

o Accelerated Cure Project Trifold
    Sonia Teixeria

o Contributed Goods and Services
  Bernie & Phyl's
  Bill Power
  Boston North End Market Tours
  Clockwork Design Group, Inc.
  Eric Janszen
  Jayne MacVarish
  Jennifer Downing
  Rebecca Petersen
  Sarra
  Sonia Teixeria
  The Skellig
  Whole Foods

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