[Accelerated Cure Project Status] status for the month of May 2007:

[Art Mellor]

Accelerated Cure Project informal status for the month of May 2007:

Information on our other mailing lists is at the bottom of this message.

>>> Joining/Leaving Us This Month

o We welcome our new Events Coordinator, Jane Follansbee who will be
  handling a range of daily administration tasks as well as taking
  over for Sarah Nels on the running of east coast events and
  volunteer initiatives.  Jane's bio can be found here:
  http://www.acceleratedcure.org/about/people.php?section=2&id=87

o Sarah Nels has taken on a new role as Assistant Director of Events
  and Volunteer Relations and has relocated to San Francisco to open a
  new office for us there. She's going to need help getting things up
  and running, so if you are able to help out in the bay area, please
  send and email to sarah-sf at acceleratedcure.com

o We have two summer interns joining us from MIT to help work on the
  Cure Map and Repository - Dawn Spelke and Vivi Vasudevan

o Phyllis Baron has joined our Board of Advisors.  Phyllis' bio
  can be found here:
  http://www.acceleratedcure.org/about/people.php?section=6&id=88

o Bob Glanzman of Novartis has joined our Pharmaceutical Advisory
  Board. We'll announce availability of his bio as soon as we have it
  posted. 

o Alexis, who was temping with us for the past month has completed her
  tour of duty and has moved on. Thanks for all her help!

o Dave Kaffine, volunteer extraordinaire, contributed a week of his
  vacation to working for us on our database here in the office. Wow.

>>> Research

Repository:

o At the end of May, 477 subjects had enrolled at our five active sites.
  Complete status can be seen at:
  http://www.acceleratedcure.org/repository/status.php

o Two more sites have been approved to enroll pediatric subjects in the 
  repository:  Johns Hopkins (Baltimore, MD) and Barrow (Phoenix, AZ).
  The new documents for pediatric recruitment are available here if
  you would like to see what it is all about:
  http://www.acceleratedcure.org/repository/downloads.php

Other scientific projects:

o Art and Hollie traveled to Long Island, NY to meet with Jim Watson
  (co-discoverer of the structure of DNA) and Jan Witkowski of the
  Cold Spring Harbor Laboratory where we hope to hold a scientific
  meeting later this year.

o Art and Hollie caught up with our scientific advisor Peter Lansbury
  over lunch and heard about his new Parkinson's disease business
  venture.

o Hollie and Art also met with Mehmet Yanik, assistant professor at
  MIT, Sandy Aronson, director of IT at the Harvard Center for
  Genetics and Genomics, and Isaac Kohane, chair of the informatics
  program at Children's Hospital.

>>> Fundraising

o You can raise money for Accelerated Cure Project just by searching
  the Internet.  Go to http://www.goodsearch.com, type Accelerated Cure
  Project into the "I support" box and click on "verify," then search
  the Internet just like you would with any search engine.  GoodSearch
  shares its advertising revenue with charities so every time you
  perform a search you'll be earning money for us.

o If you would like to see more things happening in your community to
  support Accelerated Cure Project, check out our Expansion Team
  program.  We are looking for individuals willing to do
  letter-writing campaigns, run events, and set up a named funds:
  http://expansion.acceleratedcure.org/bcpanemone/supporters.asp

>>> Education

o We'd like to no if you have or have not been diagnosed with
  depression (whether you have MS or not) for our current poll:
  http://www.acceleratedcure.org:8080/node/2678

o We've partnered with Praxeon to support their new healthcare search
  engine that provides answers to naturally phrased neurological
  questions called Curbside.MD:
  http://www.acceleratedcure.org/msresources/curbside.php

o We've gotten a few press mentions:
  http://www.acceleratedcure.org/news/bcp.php  

  Including about a petition we hope you will all support and Art
  going through Biogen Idec's new MS Simulator

o We continue our daily MS News updates

  http://msnews.acceleratedcure.org

>>> Community Building

o Art and Melissa had a final meeting with members of the Sloan Tiger
  Team assigned to Accelerated Cure Project to investigate how
  for-profit corporations select nonprofit partners and what we can do
  to be more successful in this area.

o Art flew down to DC to attend a meeting of the MS Coalition. This
  group of MS organizations has formed to create a forum for working
  together. You can read more about it at:
  http://www.multiplesclerosiscoalition.org/

o We had a number of meetings with various people:
  - Art met with Ken Farbstein about his patient safety blog
  - Art and Melissa attended Biotech Tuesday, and receptions at BIO
  - Art participated in a conference call to talk about clinical trial
    retention ideas for the upcoming FTY720 trial
  - Art met with the folks over at http://www.patientslikeme.com

o As always, a few more T-shirt pictures are available:
  http://www.acceleratedcure.org/events/tshirt.php

>>> Events

Detailed information about all of our upcoming events can be found on
our web site: http://www.acceleratedcure.org/events/calendar.php

o July 25: Enjoy dinner, drinks and live music at Orleans Restaurant in 
  Somerville, MA at the Second Annual Benefit to Cure MS. 
  http://www.acceleratedcure.org/events/eventpages/20070725_orleans.php

o September 9: Join the Greater Cincinnati Cure Project for the Second 
  Annual Canine Happy Hour featuring a cash bar, concession stand, live 
  music, 3.5-acres off-leash area for dogs, silent auction, goody bags 
  and a raffle/giveaways for all. 
  http://www.acceleratedcure.org/events/eventpages/20070908_canine.php

o November 17: Save the date for the Seventh Annual Accelerated Cure 
  Party at the MIT Faculty Club in Cambridge, MA. 
  http://www.acceleratedcure.org/events/eventpages/20071117_acp_party.php

Previous Events:

o A big thank you to our many friends and supporters in Cincinnati who 
  organized and participated in the "Kick MS for Karen" Walk 2007 on 
  May 12th raising over $6,000 in support of Accelerated Cure Project's efforts

o Another big thank you to the many volunteers, sponsors, and
  participants who turned up on May 19th to partake in the Sixth
  Annual Hunt to Cure MS Scavenger Hunt in Waltham, MA which raised
  over $23,000 for Accelerated Cure Project.  Pictures, results, and
  the list of items to be found can all be found here:
  http://www.acceleratedcure.org/events/eventpages/20070519_hunt.php

>>> Operations

Operations May Status

o Our audit is complete and the 2006 audited financials should be
  available on our website soon

o The Summer 2007 newsletter is now available at:
  http://www.acceleratedcure.org/news/newsletter.php

o Volunteer Philip Fryer will be the new editor-in-chief of
  Accelerated Cure Project's newsletter, starting with the Fall issue.
  He brings two years of newsletter editing experience to this
  position, as well as several decades of experience working as a film
  reviewer and librarian.

>>> Volunteer Efforts Reported Last Month

o Admin
  Bonnie Hakkinen
  Kelly Novak

o Benefit to Cure MS 2007
  Holly Perreault

o Community Building
  Jane Shapiro

o Donor Database Project
  Dave Kaffine

o Greater Cincinnati Cure Project Canine Happy Hour 2007
  Amy Grof
  Christina Urbanowicz
  Cindy Fink
  Debbie Mann
  Jodi Supinski
  Kemp Jaycox
  Mary Owensby
  Peggy Shannon

o Greater Cincinnati Cure Project Concert 2007
  Christina Urbanowicz

o Fundraising
  Lauren Smith

o Medeiros Family Fundraiser 2007
  Nancy Medieros
  Personal Appeal
  Pat Phelps

o Repository MRI Project
  Sue Ropiak

o Scavenger Hunt 2007
  Alexis Lahey
  Amy Carrier
  Aneeka Cheema
  Annemarie Armstrong
  Bryan Gildenberg
  Dana Toland
  Debbie Mellor
  Jeanne Farrow
  Jeff Shapiro
  Jen Matheson
  Jennifer Frank
  kara Rogers
  Keff Dolan
  Kevin Harlinski
  Kristen Jones
  Lisa Sargeant
  Michelle F. Geller
  Peter Schmidt
  Rebecca Petersen
  Robert Valinote
  Roxanna Perry
  Shauna Jordan 
  Stephanie Sisto
  Theresa Hahn
  Vikki Ott

o Sloan Tiger Team 2007
  Jyeh Gan
  Karin Gregory

o Contributed Goods and Services
  Matrix Media
  Clockwork Design Group, Inc
  Extended Stay Deluxe
  Holiday Inn Express
  Sheraton Harrisburg Hershey

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