[acp-status] status since last reported on 6/27/06

[Art Mellor]

Accelerated Cure Project informal status since last reported on 6/27/06:

Information on our other mailing lists is at the bottom of this message.

>>> Joining/Leaving Us This Month

o Our intern, Jessica Domnitz, has completed her stint working with us
  and will return to her regularly scheduled programming at
  Connecticut College.

>>> Cure Map/Repository

Repository:

o We've enrolled 20 subjects total at Johns Hopkins and the Shepherd
  Center since we last reported status a month ago, and UMass.  to
  enroll their first subject this week.  Other scientific projects:

o The repository was mentioned in the WSJ in an article about advocacy
  groups that are building resources for scientific use:
  http://www.acceleratedcure.org/news/bcp/20060711-wsj.php

o We received a sample distribution request from a researcher at
  Stanford and are in the process of fulfilling the request.

o Art, Hollie and Sara met with Daedalus Software in Cambridge, MA to
  learn about their software solutions for managing biorepositories.

Cure Map:

o We continue to make progress on the Cure Map, with the Nutrition
  phase 2 documents now ready for outside review.  Hollie is working
  on completing the Trauma phase 1 document, and our interns Mike and
  Ali are working on the Genetics and Trauma phase 2 documents.

Other Scientific Efforts

o Art and Hollie attended the Second International Rare
  Neuroimmunologic Disorders Symposium organized by Johns Hopkins.  It
  was a good opportunity to connect with our Johns Hopkins colleagues
  and hear about MS research and clinical developments. You can read
  Hollie's write up here:
  http://msnews.acceleratedcure.org/article.pl?sid=06/07/26/1117237

o The HuGE manuscript has been sent to a major scientific journal for
  potential publication.

>>> Fundraising

o You can raise money for Accelerated Cure Project just by searching
  the Internet.  Go to www.goodsearch.com, type Accelerated Cure
  Project into the "I support" box and click on "verify," then search
  the Internet just like you would with any search engine.  GoodSearch
  shares its advertising revenue with charities so every time you
  perform a search you'll be earning money for us.

o If you would like to see more things happening in your community to
  support Accelerated Cure Project, check out our Expansion Team
  program.  We are looking for individuals willing to do
  letter-writing campaigns, run events, and set up a named funds:
  http://expansion.acceleratedcure.org/bcpanemone/supporters.asp

>>> Education

o The Kelly Packowski MS Foundation (http://www.kpmsfoundation.com) is
  offering a limited number of grants to individuals with MS in New
  England to cover the costs of eight months of coaching services from
  Rosalind Joffe of CIcoach.com (http://www.cicoach.com).  To learn
  more, contact Rosalind Joffe: rosalind at cicoach.com.

o MSNews (http://msnews.acceleratedcure.org) continues to run daily updates
  on MS related items. If you come across anything MS related and new
  on the web, please submit it to our site. 

>>> Community Building

o We've been getting a bit of press recently, both for our repository
  and for various volunteer fundraising efforts:
  http://www.acceleratedcure.org/news/bcp.php

o We had a number of meetings with various people:
  - Art did a radio interview for use on Matrix Media's syndicated
    health programs
  - We met with Avi Kremer and Nate Boaz from Prize4Life.org - an
    organization creating an "X Prize" for ALS research.
  - Art talked to Paula Kim of Pancreatic Cancer Action Network
  - We've been meeting with numerous volunteers at an increased pace. 

o As always, a few more T-shirt pictures are available:
  http://www.acceleratedcure.org/events/tshirt.php

>>> Events

o Carlo Magno is currently riding in an antique, electric wheelchair
  en route from Seattle to New York City to raise funds and awareness
  for handicapped accessibility and $1 million for MS
  organizations. You can read more about his progress or make a
  contribution here: http://www.thespiritofhope.org/home/

o Sierra Doherty hikes the 468-mile Colorado Trail to raise funds and
  awareness for several MS organization, including LDN for MS
  Research.  You can read about her effort or make a contribution
  here: http://cub.alaskapacific.edu/sdoherty/donate.htm

o The Greater Cincinnati Cure Project will be hosting a Canine Happy
  Hour on Saturday, August 12th from 3:00-6:00 pm in Cincinnati, OH to
  benefit Accelerated Cure Project.  For more information or to RSVP,
  contact Kemp Jaycox at 513-300-7745, email caninehappyhour at yahoo.com
  or click here:
  http://www.acceleratedcure.org/events/eventpages/20060812_canine.php

o Vicki Finlayson will be hosting a benefit social for Accelerated
  Cure Project and LDN for MS Research on Sunday, September 17th from
  4pm - 9pm in Auburn, CA. For more information or to purchase
  tickets, call Vicki Finlayson at 530-268-8150 or click here:
  http://www.acceleratedcure.org/events/eventpages/20060917_lakeofthepines.php

o Save the date for Accelerated Cure Project's 2006 Annual Event
  scheduled for Saturday, November 18th from 6pm - 10pm at the MIT
  Faculty Club in Cambridge, MA.  More information coming soon!

o Congratulations to Lauren Smith, Eric Karls, and Randy Smith for
  completing MS Pedal to the Metal, a bike ride from Chicago to
  Waltham, MA that raised over $21,000 in support of our efforts! You
  can read about their adventures here:
  http://blueskycollaborative.typepad.com/mspedal/

o Congratulations to Ryan Murphy, Tom Sullivan, Mike Maher and Kevin
  Welch for completing their cross country ride from Seattle to Boston
  to raise over $8,000 for Accelerated Cure Project.  You can read
  about their adventures here:
  http://www.coasttocoastcycletocurems.blogspot.com/

o Thank you to Mario Raneses for coming out to Waltham on Monday 7/10
  to provide a demonstration of the Segseat, a seated version of the
  Segway that can be used as an alternative to a wheelchair or
  scooter.  If you'd like more information about the Segseat visit
  http://www.segseat.com/ or contact Mario directly at mario.r at segseat.com

  Thanks also to John Hikel who came out that same evening to show us
  the ParaGolfer (seen here: http://www.parabasetec.com/) which allows
  individuals with disabilities to stand up and golf.  For more
  information, contact John at teachgolfeasy at aol.com.

>>> Operations

o Things have been moving along smoothly with nothing special to
  report at this time

>>> Volunteer Efforts that have been reported since last time

o June Contributed Goods and Services

Clockwork Design Group, Inc.
Anchor Inn Motel
Holiday Inn Express, Downtown Spokane
Spamnix Software

o Admin

Barbara Morgenlender
Joyce Ananian
Kelly Novak
Marie Mota
Sue Chamberlain

o Coast to Coast bike ride

Kevin Welch
Michael Maher
Ryan Murphy
Thomas Sullivan

o Community Building

Tony Iannarone
Maggie Harling
Martine Assaf
Gabe d'Annunzio

o Greater Cincinnati Cure Project Canine Happy Hour 2006

Cindy Fink
Jodi Supinski
Kemp Jaycox
Ursula Hicks

o MS Pedal to the Metal 2006

Eric Karls
Jeanette Nels
Lauren Smith
Randy Smith

o MS Social

Austin Ivey

o Neuroanatomy Paper

Jennifer Tobin
Joel Jacobs

o Personal Appeal

Pat Phelps

o Summer Intern

Alexandra Cantley

o Teva Event Table

Martine Assaf
Nancy Costello

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