[bostoncure.org] informal status since last reported on 12/16/02
Art Mellor
art at bostoncure.org
Tue Jan 14 13:27:41 EST 2003
Boston Cure Project informal status since last reported on 12/16/02:
>>> Joining Us This Month
Since our last report we've had a couple of additions:
o For the month of January we are getting help on the Cure Map
document from Hillary Stanton, an MIT Sophomore who is participating
in MIT's new January "externship" program.
o We are happy to announce the addition of Melissa Baker to our
full-time staff as Development Manager. She will be in charge of our
fundraising efforts. You can read her bio here:
http://www.bostoncure.org/default.php?nav=bcp&topic=people&bio=MelissaBaker
>>> Cure Map
Hollie and Hillary are plowing ahead on the phase 2 genetics
effort. Currently we are working on the inherited vs. spontaneous
mutation analysis. Completed are the sections on mitochondrial DNA and
chromosomal abnormalities. These 2 sections will be put up on the web
site as soon as Art takes the time to put them there.
The Blood & Tissue Bank work is moving forward, we are in possession
of a draft Informed Consent Form and hope to have the subject
questionaire first draft done soon.
>>> Education
MSNews (http://msnews.bostoncure.org) continues to run daily updates
on MS related items. If you come across anything MS related and new on
the web, please submit it to our site.
>>> Community Building
We've been meeting with a number of people, including Marc Pollick of
the Giving Back Fund and Cure Parkinson's, the folks from Timeblaster
- software to help do scientific literature searches on genetics, and
the local area representative for Serono.
We also took a company outing to see "Lord of the Rings: The Two
Towers" on opening day :-)
>>> Events
Hollie attended the MIT Computational and Systems Biology Initiative,
a new symposium on the topics to be covered by MIT's new department in
this area.
>>> Fundraising
We are launching our 2003 effort at the moment. We've been getting
help from Rita Fuerst-Adams, Alison Glastein, Kate Richardson, Ronda
Jacobsen, and Betsy Campbell.
We'll be announcing an exciting challenge gift we have been pledged
shortly, but in addition we've had help from these unique
contributors:
- Just Books' day to benefit the Boston Cure Project
- A significant gift from the Toleo Foundation for the Anna Peabody Fund
- A successful letter writing campaign by the Anna Peabody Fund
- Five Star Quality Care, Inc. instead of having a holiday party, takes
suggestions from employees on charitable contributions and Ben
Pressgrove recommended us.
Remember, you can support our efforts by contributing:
http://www.bostoncure.org/default.php?nav=involved
>>> Volunteer Efforts Not Mentioned Elsewhere
Clockwork Design Group, Inc. has been designing our Annual Report
Sue Mellor and Krista Milne continue to work as volunteer staff
Maggie Harling is continuing work on the newly diagnosed brochure
Brian Del Vecchio has been helping upgrade the MSNews server
Lisa Sargeant is helping write articles for the next newsletter
Maria Samuel and Mark Dombeck have contributed articles to MSNews
--
...............................................................................
Art Mellor : HTTP> http://www.bostoncure.org : Boston Cure Project
art at bostoncure.org : * Donate Online * : for Multiple Sclerosis
Cell> 617/899-2360 : Main> 781/788-0880 : Fax> 781/788-8118
The deeper the understanding that people have of the basic issues, the
less likely they are to be misled. -- Bernadette Devlin
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