[bostoncure.org] Status since last reported on 11/20/02

[Art Mellor]

Boston Cure Project informal status since last reported on 11/20/02:

>>> Joining Us This Month

We haven't had any new additions this month

>>> Cure Map

We continue to work on the Cure Map documents, Hollie has finished up
drafts of the Chromosomal and Mitochondrial DNA scientific literature
reviews that will be posted to the web in the next week or so. She is
also nearing completion of a spreadsheet containing synopses of the
several thousand MS candidate gene and genome screen studies. In
addition she has begun work on an MS research strategy overview.

On the blood and tissue bank front we have continued to meet with
Genomics Collaborative, the company we have selected to help store and
collect our samples. They are currently crafting a contract and
helping develop the study protocol and informed consent form. We are
in the process of creating a questionaire to go along with the sample
collection based on about 8 other questionaires we have acquired.

>>> Education

MSNews (http://msnews.bostoncure.org) continues to grow in hits and
continues to have daily updates on news about MS. If you haven't been
to the site, we highly recommend signing up so you can receive daily
updates via email.

>>> Community Building

Art was featured in an interview article for the Arlington Advocate
thanks to Teak Media:
http://msnews.bostoncure.org/article.pl?sid=02/12/04/138239&mode=nested

In addition, Robotham Creative finished off the Public Service
Announcement they produced for us. You can see a version on our web
site at the bottom of the page here:
http://www.bostoncure.org/default.php?nav=news&topic=documents

>>> Events

The main thing we did over the past month was prepare for and
follow-up from our 2nd Annual Boston Cure Party!. It was a huge
success - it was attended by over 250 people (a quarter of whom were
new names), brought in over $20,000 in sponsorships and contributions,
and featured speakers Jonathan Katz and Peter Lansbury as well as
Boston Cure Project co-founders Tim Vartanian and Art Mellor.

Our Sponsors included

Platinum:
-Biogen, Inc.
-Serono Inc.
-Berlex Laboratories, Inc.
-Clockwork Design Group, Inc.
Silver:
-Millenium Pharmaceuticals, Inc.
-Teva Neuroscience, Inc.

Vendors who have given goods or services:
Clockwork: program & invitation design, fall newsletter design
Pete Moller and QRSTs: batch of tshirts for event

A complete list of volunteers from the event is below.

>>> Fundraising

Remember, you can support our efforts by contributing:
http://www.bostoncure.org/default.php?nav=involved

>>> Volunteer Efforts Not Mentioned Elsewhere 
BOSTON CURE PARTY:
Bonnie Jean Perkins
Noelle Holly
Michael Haag
Sue Mellor
Krista Milne
Mark Halliday
Noreen Henson
Anne Reed
Brian Del Vecchio
Theresa Hahn
Anna Peabody
Dr. Peter Lansbury
Sean Langan
Debbie Mellor
Brenda Nichols
Pradeep Gode
Pam Hitchmoth
Brian Mellor
Nancy Kaplan
George Peabody
Roberta Green
Tina Yahiaoui
Jill Cameron
John Copeland
Asha Mellor
Kim Pagan
Loni Sotir
Robin Dolan
Jennifer Wise
Pam Wolf
Leslie Kenney
Kimberlie Sachs

NEWLY DIAGNOSED BROCHURE:
Dr. Maggie Harling
Dr. Lisa Paine
Cynthia King

OPERATION MISSING LINK:
Katherine Mosley
Judith Murawski
Cher Koor

OTHER PROJECTS
Matt Wise (setting up FTP server)
Brian Del Vecchio (upgrading MS News server - in progress)