[bostoncure.org] Informal status since 4/16/02

[Art Mellor]

Boston Cure Project informal status since last reported on 4/16/02:

We continue our work to cure Multiple Sclerosis via developing the
Cure Map: 

o Hollie Schmidt has a first draft of our pathogen document out for
  review. This document breaks down how diseases are caused by
  pathogens in a systematic fashion. It is being reviewed by several
  members of our Scientific Advisory Board plus some other
  scientists. 

o Tim Vartanian continues the literature search for research on
  genetics and MS as it relates to our genetic disease breakdown.

o Meetings and phone calls with the founders of US Genomics (working
  on high-speed, low-cost, complete genome sequencing), John Reed of
  the Burnham Institute (a similar minded organization working on
  cancer), Arlyn White and Linda Guiod (President and VP of NE NMSS
  chapter), Arthur Ullian of the National Council on Spinal Cord
  Injury, Stephanie Clipper of the NIH (she's the nonprofit liaison),
  Billi Goldberg (AIDS science advocate), Paul Jones of
  www.mult-sclerosis.org, and a really good lunch with our Pharma
  Board member Ayad Abdul-Ahad from Berlex (and formerly of Rebif). 

o Continued the always ongoing fundraising effort. You can make a
  contribution at: http://www.bostoncure.org/default.php?nav=involved

Joining us:

o Hollie Schmidt started her full-time position as VP Scientific
  Operations to run the Cure Map effort full-time. 

Volunteer Efforts:

o The MSNews Portal is so close to launching we can taste it. Thanks
  to Brian Del Vecchio, the software is up and running, cleaned up and
  ready to go. We'll be announcing the volunteer tasks we need help
  with shortly

o The main web site update project by Deb Brown, Theresa Hahn, and
  Chad Tempest is moving forward - mostly waiting for some work that I
  need to do :-)

o Some work on a new corporate overview has been started by George
  Peabody. 

o PR work is in high-gear thanks to Krista Milne, and a possible
  television PSA is being developed with help from Robotham Creative.

o A volunteer task list for our web site is being written up by Lisa
  Sargeant. 

o The MS101 document Allitia DiBernardo is working on is progressing
  nicely. 

o A Clinical Trials document is being developed by Margaret Doris.

o A search to find sites that we should be linked on is under way by
  Dave Baker and Rachel Golub.

o A citation database to hold the results of the literature searches
  we are doing is being developed by Mark Dombeck and Robin
  Whitworth. 

o And a nice upgraded firewall script has been developed by David
  Burrage and just needs to be reviewed, installed, and tested.

Events:

o Ken Siegel hosted an excellent house party to help us raise
  funds. It was a lot of fun and we got to use the diner he has in his
  basement. Yes, he has a diner in his basement.

-- 
...............................................................................
    Art Mellor     : HTTP> http://www.bostoncure.org : Boston Cure Project
art at bostoncure.org :       * Donate Online *         : for Multiple Sclerosis
Cell> 617/899-2360 : Main> 781/788-0880              : Fax> 781/788-8118

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