We work with our network of leading neurologic clinics to identify eligible study participants. As of July 2012, we have enrolled more than 3,000 study participants—with 400 of those participants donating samples on two or more occasions.
Enrollment of people with other demyelinating diseases (neuromyelitis optica, transverse myelitis, acute disseminated encephalomyelitis, and optic neuritis) also continues through successful partnerships with the Guthy-Jackson Charitable Foundation and the Transverse Myelitis Association.
As of July 2012, we have approved 63 requests for samples and data, 30 of which have come from academic/nonprofit institutions and the other 23 from industry research groups.
Samples and data have been sent to researchers throughout the United States and across the globe to countries such as Australia, Germany, Israel, Switzerland, and the United Kingdom.
A key feature of the ACP Repository is that scientists accessing our samples must commit to sharing any experimental results and data with ACP so other users have the opportunity to further explore or build upon those results, formulate new hypotheses, etc.
As of July 2012 we have received a total of 19 data sets and this number continues to grow as more data are returned to the Repository. To date, more than 250 million data points have been deposited for the benefit of all researchers.
|Subject Breakdown||Treatment Status||Time Since Diagnosis|
|Subjects: 3005||Tx+||Tx-||Tx Naive||Pending||< 5 yrs||5 - 10 yrs||> 10 yrs||Pending|
|Cases: 2350||MS: 1763||RRMS: 1416||941||140||223||112||666||387||286||77|
|Tx Naive||Never On Treatment|
|Pending||Data Still Pending|
RRMS: Relapsing Remitting MS
SPMS: Secondary Progressive MS
PPMS: Primary Progressive MS
CIS: Clinically Isolated Syndrome
TM: Transverse Myelitis
NMO: Neuromyelitis Optica
ON: Optic Neuritis
ADEM: Acute Disseminated Encephalomyelitis