Neuromyelitis Optica Repository

Neuromyelitis Optica Repository

Accelerated Cure Project has formed a partnership with The Guthy-Jackson Charitable Foundation, an organization dedicated to funding basic science research to find answers that will lead to the prevention, clinical treatment programs and a potential cure for Neuromyelitis Optica (NMO) Spectrum Disease.

Our two organizations, together with the University of Texas Southwestern (UTSW), are creating a special collection of NMO samples and data to foster scientific collaboration for NMO Spectrum Disease. In this initiative, people with NMO can provide blood samples and information to be used by qualified scientists whose research will contribute to the diagnosis, prevention, treatment, and/or cure of NMO.

Study Participant Enrollment

Participants can enroll in the Repository by visiting one of the ACP Repository sites (see below or visit our Collection Sites page for a list of locations) or by accepting an enrollment visit from a UTSW study nurse. If you would like to donate a sample to the NMO Repository but are unable to visit one of the collection sites, the study nurse will travel to your location to draw your sample.

Sample Requests

Researchers interested in receiving samples have to submit a written proposal using the ACP sample request form. The proposal is reviewed at ACP, as well as by an oversight committee, before access to samples is granted. For information about requesting and receiving samples and/or data for research, visit our For Researchers or Access Biospecimens pages.

Collection Sites

  • Johns Hopkins School of Medicine, Baltimore*
  • University of Texas Southwestern Medical Center, Dallas*
  • Multiple Sclerosis Research Center of New York*
  • Shepherd Center, Inc., Atlanta
  • University of Massachusetts Medical School, Worcester*
  • Barrow Neurological Institute, Phoenix (no longer recruiting)*
  • Beth Israel Deaconess Medical Center, Boston
  • Ohio State University Medical Center, Columbus
  • Rocky Mountain MS Center at Anschutz Medical Campus, University of Colorado Denver
  • Stanford University

*Includes pediatric collections

Contact Information

NMO Repository Study
Neuromyelitis Optica Program
Department of Neurology UT Southwestern
5323 Harry Hines Boulevard
Dallas, TX 75390-8806

Martha Mann, RN
Phone: 214-645-0543 
Pager: 214-786-0381
Fax: 214-645-0556
E-mail: Martha.Mann@utsouthwestern.edu

Guthy-Jackson Charitable Foundation
All Greater Good Foundation
8910 University Center Lane, Suite 725
San Diego, CA, 92122

 
Julia Heying
Phone: 858-638-7638
E-mail: jheying@allggf.org