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Biospecimens and Data

Biospecimens and Data

Obtaining access to the ACP Repository Biospecimens and/or the associated data involves the following:

Step 1: Request for samples and/or data submitted by researcher
If you are interested in requesting samples and/or data from the ACP Repository, please download and submit the Sample/Data Request Form document to ACP.

This proposal document asks for information such as a description of the type and amount of samples needed, the planned research, details regarding the data that will be returned to the Repository, and the status of IRB approval and funding. We encourage you to request as many samples as you feel are necessary to produce a valid conclusion for your investigation.

Step 2: Preliminary review of proposal by ACP
Your request for samples and/or data will be reviewed by Accelerated Cure Project staff for completeness, alignment with the purpose of the Repository, and our ability to fulfill the request. You will be notified of any issues and given the opportunity to submit changes.

Step 3: Final review of proposal by ACP Repository Oversight Committee
After preliminary review, the proposal will be further reviewed by our Repository Oversight Committee, who will make a recommendation on whether or not to grant your request based on an assessment of a number of factors including:

  • Potential benefit of this research to people with MS and/or related demyelinating diseases
  • Scientific merit of the proposal
  • Adequacy of the plans for contributing data back to the ACP Repository

Oversight committee reviews occur on a bimonthly schedule; proposals are sent to committee members during the first week of January, March, May, July, September, and November. We recommend that you send your proposal to Accelerated Cure Project at least two weeks before the next distribution date in order to be included in that review cycle. Accelerated Cure Project will make a final decision on providing the samples and data to you.

Review the Repository documents to find additional resources on accessing biospecimens.

If we are unable to meet your needs, we will attempt to identify an alternate resource for you.